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494d
Hiya! I’m brand new to this app but glad to be here. I’m currently experiencing some symptoms that I don’t believe are fibromyalgia related although I’m diagnosed with fibromyalgia and was wondering if anyone could chat to me about this. I’m wondering if I could have symptoms of EDS/hEDS. I’ve been to the doctors but they fobbed me off, so I’m looking to go back soon and try and push for more help again. I use a wheelchair due to my mobility impairment.
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Edema & Anasarca
Chronic Pain
Fibromyalgia (FM)
Ehlers-Danlos Syndrome (EDS)
Hypermobility Syndromes
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480d
I was misdiagnosed with Fibro for a year ish before I was correctly diagnosed with EDS. Send a message if you'd like to chat!
483d
You’re all super kind thank you! I’ll reach out later today as it’s stupidly early right now 💕
484d
I got diagnosed with fibro over 3 years ago and with hEDS in august. I’m happy to talk!
1
I’m diagnosed with forms of EDS including hEDS if you send me a chat I would love to talk and maybe help you out a bit!💗
486d
Hey! I was originally diagnosed with fibromyalgia but I didn’t feel it was the correct diagnosis, I finally saw a geneticist and was diagnosed with heds. The geneticist was the first doctor to ever believe there was something more
I can chat if you need to discuss anything!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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