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548d

Hello, I’ve never done anything like this before, but I would really like to get to know those who are going through similar experiences to myself! It can be very isolating so I like the idea of this app and hope that we can support each other going forward!

Top reply
    • Disneymum

      533d

      Hey I have hEDS and pots but I also had a blood clot 2 years ago and am limited for my treatment options. Always free for a chat! Xx

    • Disneymum

      533d

      Hey I have hEDS and pots but I also had a blood clot 2 years ago and am limited for my treatment options. Always free for a chat! Xx

    • Vievie

      533d

      Hey! I have EDS and am going through problems with fainting, which may be associated with POTS, so I’d love to talk if you’d wanna! <3

    • Jessica.anne

      536d

      Looks like we're really similar! How are you? X

    • Sarahaap602

      536d

      Would love to make some friends who can chat to

      • KikiJay

        535d

        @Sarahaap602 me too!

    • Sarahaap602

      536d

      Hi me too!

    • willownyx

      537d

      Hihi! Would be happy to chat any time :)

    • inspainwithoutthes

      544d

      you’re not alone!! I’ve met some awesome people through groups and chats like this!

    • Zebragirl

      545d

      Was chronically injured first and then discovered I was chronically ill. Would be happy to talk to you bc I know how isolating it feels before you find a community. I promise you're not alone in this journey

    • Zebragirl

      545d

      Hi! I have undiagnosed hEDS. I've just in the past few months connected all the dots to get there, and my rhuem appointment is next month

    • Doglover25006

      545d

      Hi! I’m newly diagnosed with hEDS and suspect I have POTS but no diagnosis for that yet. Would love to talk!

    • EclipseEDS

      545d

      We do be almost the same though. Friends?

    • Ra1ny_Days

      546d

      Hello! I have been diagnosed with EDS for a couple years at this point, while I don't have POTS, ect, if you're ever interested in knowing my experience you can always shoot me a message!! 💕

    • RainbowzebraJules

      547d

      I am newly diagnosed and would love to connect with others

    • Teal100

      548d

      Hi, we are quite similar

    • xoxsnuggles

      548d

      Hi I also have eds - hypermobility and I am currently being investigated for pots would love to chat

    • Wanderinglumos

      548d

      Hi! I have EDS and POTS as well. Feel free to message me if you wanna chat! I love that this app gives us an opportunity to support one another like this.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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