I've had worsening symptoms my entire life, but haven't been able to see a genetic doctor yet bc the clinic she works at here doesn't accept patients with a history of addiction problems. my doctor diagnosed me tentatively with EDS but she's worried I might have marfans syndrome bc of my height.
Mine was diagnosed in the rheumatology clinic at children's hospital, not sure where you live or if you have access to a rheumatologist but sometimes they do refer adults over to a children's hospital because of how many things they specialize in.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
.svg)
.svg)
leafeye
296d
I've had worsening symptoms my entire life, but haven't been able to see a genetic doctor yet bc the clinic she works at here doesn't accept patients with a history of addiction problems. my doctor diagnosed me tentatively with EDS but she's worried I might have marfans syndrome bc of my height.
0
3
Share
Ehlers-Danlos Syndrome (EDS)
SlothFan26
295d
0
Old.Greg
294d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision