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I was diagnosed with hEDS as a teenager but my parents didn’t keep track of any of my medical records. As an adult I’ve moved and am trying to seek out a diagnoses again so I can receive work accommodations but all my efforts have failed. My highest bet was a rheumatologist but they said they “don’t do that kind of testing”. I didn’t know how lucky I was to have good doctors as a teenager and now I feel completely lost.
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Based on the experiences shared, it seems that finding a doctor who is familiar with hEDS can be challenging. Some people have found success with geneticists or rheumatologists who are aware of EDS. Others have suggested seeking out local support groups for EDS, as they may be able to recommend knowledgeable doctors. It's also mentioned that genetic testing might not be helpful for diagnosing hEDS specifically, as the genetic markers for this subset of EDS are not yet known. Persistence in seeking out new doctors until you find one who listens and understands your condition is often necessary.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
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