I am curious if anyone else experienced a fear of expressing when they feel well? I have had people ignore and disregard my symptoms and concerns for so long that I find it scary to express when i feel well, for fear that people will assume I am making up or exaggerate the bad days.

Ehlers-Danlos Syndrome (EDS)

Chronic Headache

Postural Orthostatic Tachycardia Syndrome (POTS)

Chronic Pain

Symptoms Involving Nervous & Musculoskeletal Systems

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  • peachfuzz


    alllllllll the time :)

    • Mira.P.Takki


      thank you for responding, sometimes it makes me feel crazy.

  • Lesh1313


    Yes!!! I’m constantly told I’m being dramatic:(

    • Mira.P.Takki


      it’s so disheartening and frustrating! It makes me feel sad and worried to express when I feel good and when I feel bad. It’s sooo isolating! 😥

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