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hippo5

Updated 11mo ago

Xolair for MCAS: Experiences?

Have y’all done Xolair for MCAS? How was it?

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LeopoldTheRidiculous

2y

No, but I tried dupixent. And had an allergic reaction that landed me in the ER, which was a whole nightmare in and of itself because they assumed it was a street drug despite me holding up my phone to show them because they refused to google it themselves.
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LeopoldTheRidiculous

2y

They're both -umab (dupixent is dupliumab).
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hippo5

2y

I am so sorry that happened to you :(
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bojanglesbiscuit

2y

Yes I did xolair 6 months didn’t really notice an improvement.
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TheRealHipster

2y

I was going to but couldn’t bc I have severe adrenal fatigue which is a contraindication w xolair. My reactivity in general is also way too high right now and that stuff stays in your system for a while and can’t be flushed out or anything
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chxrryblxssom

2y

I haven’t
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CT1409

2y

My partner has. It has helped then tremendously. We're actually at a Xolair appointment for them right now. I haven't yet. My doctor says my condition is far worse, and she's worried I'll have a bad reaction
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Rosabella

11mo

I started xolair for mystery chronic idiopathic uticaria three months ago. I believe is MCAS but doc not willing to hear about research with mcas testing. So they are just trying to treat whatever this is. It's autoimmune based on my CU index of 17

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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