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hippo5

918d

Have y’all done Xolair for MCAS? How was it?

Top reply
    • Rosabella

      241d

      I started xolair for mystery chronic idiopathic uticaria three months ago. I believe is MCAS but doc not willing to hear about research with mcas testing. So they are just trying to treat whatever this is. It's autoimmune based on my CU index of 17

    • Rosabella

      241d

      I started xolair for mystery chronic idiopathic uticaria three months ago. I believe is MCAS but doc not willing to hear about research with mcas testing. So they are just trying to treat whatever this is. It's autoimmune based on my CU index of 17

    • CT1409

      886d

      My partner has. It has helped then tremendously. We're actually at a Xolair appointment for them right now. I haven't yet. My doctor says my condition is far worse, and she's worried I'll have a bad reaction

    • chxrryblxssom

      886d

      I haven’t

    • TheRealHipster

      917d

      I was going to but couldn’t bc I have severe adrenal fatigue which is a contraindication w xolair. My reactivity in general is also way too high right now and that stuff stays in your system for a while and can’t be flushed out or anything

    • bojanglesbiscuit

      918d

      Yes I did xolair 6 months didn’t really notice an improvement.

    • hippo5

      918d

      I am so sorry that happened to you :(

    • LeopoldTheRidiculous

      918d

      They're both -umab (dupixent is dupliumab).

    • LeopoldTheRidiculous

      918d

      No, but I tried dupixent. And had an allergic reaction that landed me in the ER, which was a whole nightmare in and of itself because they assumed it was a street drug despite me holding up my phone to show them because they refused to google it themselves.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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