Looking for experiences with Xolair for Mast Cell Activation Syndrome

I am taking xolair and it has helped. My body has acclimated to the dosage so I had an increase.

I've been on Xolair for about 2, maybe even 3 years now, and I don't regret it. It hasn't been a perfect cure or anything, but especially now that we've figured out the right injection schedule for me, it DEFINITELY has made a positive difference. I was really nervous about trying it and hesitated for a long time, so I understand having reservations. If I were in your shoes though -- not able to eat anything by mouth, Benadryl infusions, steroids -- I would definitely give Xolair a try. I hope things improve for you soon!