I was diagnosed with POTS last year and have been managing it pretty well. About three weeks ago my blood pressure was way too high so I had a med dose lowered. Last week I had severe blood pressure drops and ended up in the ER with fluids before being told I'm fine. I feel kinda hopeless right now

i’ve dealt with POTS and chronic fatigue symptoms since i was 13 years old, and for reference, i’m 20 now. i’ve seen all kinds of doctors who used to preach about my eating and exercise habits, even after i explained that i used to be a very active kid until this all started to set in. and now, as i’m still trying to find a doctor who will listen to me, they skirt around the word POTS and instead just describe it and give me all recommendations POTS patients are given (compression socks, increase salt intake…), but it’s discouraging that they won’t give me a proper diagnosis. without a proper diagnosis, i have trouble using mobility aids when i need to because i feel like i “shouldn’t” be. i have trouble talking to others about it because i don’t want to come across as faking it. and overall makes accommodating myself extremely difficult because of self-doubt. this post is mainly ranting, and sharing my experience hoping maybe someone else is feeling the same thing.

Struggling with POTS Symptoms

Living with POTS: The Uncertainty of Recovery

I was diagnosed with POTS in 2017. It was so bad to the point where I was bed ridden for 6 months and had to use a walker. I couldn’t drive or do anything. I slept all day every day and was always extremely dizzy/fainting. My symptoms went away eventually but now they’re back, and I’m panicking because I don’t want it to get as bad as it was before. I’m just really frustrated with my body. Any tips or advice?