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cayden

Updated 10mo ago

Worried about Remicade treatment effectiveness

i’ve been on remicade for almost 6 years now and i’m worried it might stop working

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CrohnsyPoo

2y

Camden, I feel your pain here as I'm soon to get on Inflectra (basically same thing as Remicade). I have a really good GI doctor who has always been down to earth with me. With Crohn's medication, it's very possible for any medication to be become ineffective, to have never actually been effective, or to not be strong enough for more severe flares. That said, he has many clients who have been on IV and pill form of Inflectra/Remicade for over 10-20 years that are doing just fine. If your symptom free, he says there's no point to change it and can even make the medine less effective if you tried switching back. But if you are having symptoms, I recommend talking to your GI. Doesn't always mean you need to change your current meds, just maybe evaluate a few things.
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cayden

2y

after my insurance changed, i was put on inflectra because it didn’t cover my remicade. i recently was switched back to my previous doses, and i’ve noticed it not working as well. my GI doctor had mentioned years ago that if the remicade stopped working there weren’t that many options and chemo would be the solution to reset the whole immune system. that generally is what i am worried about. i’m only 13, and it feels like ive been doing this for an eternity. ive had these worries since i was diagnosed and i was just wanted to get other peoples opinions who go through the same things, so thank you so much, your message was comforting:)
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BeautifulSavage

2y

I know how you feel about doing this for an eternity. I was born with Crohn’s disease so it’s basically all I know. My advice sweetheart is to know that you have Crohn’s and to keep in mind that it’s not always going to be easy, but it will get better. And the time when it’s better and you’re in remission savor those moments. I’m barely 21 and I’m already mentally tired from dealing with this since I was born. But I keep going on because I’ve accepted that this is what I have and what I have to live with for the rest of my life. It get easier honey
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DD44

2y

Doctors can just make adjustments. To start a doctor should be ordering a blood test to check therapeutic levels of Remicade in your system. If the number is lower than they like, you can get an infusion sooner. So I went from every 8 weeks to every 6 weeks. Also I’m 30 now and began Remicade when I was 18.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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