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CarisNotCharis

535d

How do you guys navigate work/your professional lives with your illnesses?...I'm struggling out here 😭

Top reply
    • kimmy1234

      529d

      Honestly the only thing my work even gives me is a chair to sit on which is just bar stool, none of my managers knew was fibro was and it was kinda disheartening considering how it affects my life every day, honestly getting on a proper treatment plan with your doctor or rheumatologist helps alot, I'm currently on a medication called nortriptyline and my pain has gone from a 10 to around a 4! I feel like I can be myself again, the side affects are a bummer tho and honestly have made me feel so poorly! But it should pass after the 6 weeks mark, get a proper treatment plan! Don't do longer than you go do at work, I have a deal where I don't do longer than 6 hour shifts as I get too tired out and I end up crashing. You know your body best !

    • kimmy1234

      529d

      Honestly the only thing my work even gives me is a chair to sit on which is just bar stool, none of my managers knew was fibro was and it was kinda disheartening considering how it affects my life every day, honestly getting on a proper treatment plan with your doctor or rheumatologist helps alot, I'm currently on a medication called nortriptyline and my pain has gone from a 10 to around a 4! I feel like I can be myself again, the side affects are a bummer tho and honestly have made me feel so poorly! But it should pass after the 6 weeks mark, get a proper treatment plan! Don't do longer than you go do at work, I have a deal where I don't do longer than 6 hour shifts as I get too tired out and I end up crashing. You know your body best !

    • kmkrs

      533d

      definitely set boundaries & make sure you have guaranteed mental health days built into your schedule. non-negotiable. also, this is probably much harder than it sounds, but i tell people. we live our lives in different ways & sometimes need extra support, we deserve to be understood at work

    • Ashtonpie99

      533d

      I've just started hardcore listening to my body and giving it what it needs. Changing jobs helped a lot, my last one worked me into a several flare and I'm so glad I left

      • CarisNotCharis

        533d

        @Ashtonpie99 aww I'm glad you know what you need and are standing by your decisions. I can definitely relate. Sometimes environments or people no longer are a good-fit, and you do have to put yourself first 💕

    • r.augustus

      535d

      It’s also a big learning curve understanding what your needs are (what you can’t compromise on) and what your responsibilities are. If you’re not already aware, I’d recommend checking out the “spoon theory” of energy & everything by Brene Brown but especially her thoughts on thinking about tasks as a mixture of glass & rubber balls (essentially, you’re juggling 50 balls at once, some made of glass and some made of rubber; it’s okay to let some of the rubber ones hit the ground, but the glass ones you can’t let slip; the task is to decide which of your tasks are glass, which are rubber, & where you can “drop a few balls”)

      • CarisNotCharis

        533d

        @r.augustus wow this is such a great method of avoiding burnout. Thank you so much - I really appreciate it! I'm going to check these recommendations out now 🦋

    • r.augustus

      535d

      Don’t be afraid to set boundaries. Take the time you need for yourself, protect your energy, allocate work to other people when possible, only assume responsibility for what is within your control, sleep (!!), recharge your energy however you need to (and build your buffer periods into your schedule), drink water (!! hydrate to stay great), dress in shoes/clothes that are comfortable for long durations & stay strapped with a travel first aid kit of painkillers. Stay strong, you got this & you’re not alone

      • CarisNotCharis

        533d

        @r.augustus aww thank you so much! I really needed to hear this. I just came of a mentor meeting as I'm setting up my business and she basically reiterated what you were saying. Amazing advice - hope you're doing ok ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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