Looking for Women with Lupus to Connect With

I want to connect with other women dealing with Systemic Lupus Erythematosus. Although I'm 8-9 years into this, it's still crazy making sometimes. I want to give advice, share my story, be as helpful as I can. I know it's hard. But we do hard things 💪🏼

Your answer

karinad

2y ago

Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

Randa

2y ago

What were the symptoms of kidneys failing? I haven't experienced that yet but it seems to be pretty common for us. I do have enflamed liver with elevated liver enzymes and that's got me freaking out a little

tries

2y ago

✋ And Thank you for sharing ❤️🙏!

karinad

2y ago

Wait. I had already commented lol. Want to start a groupchat?

karinad

2y ago

Hi!! I'm 24 and just got my diagnosis on January but was diagnosed with Sjogren's last year and have been dealing with symptoms for many years

Jocevice

2y ago

I just was diagnosed last week! It’s been crazy and I have so many questions and a lot of stress I’m just trying to figure out my symptoms bc I also have POTS and EDS

SaraVirginia

2y ago

✋

Benisha

2y ago

I am 32, I have been dealing with lupus since I was 18. I got diagnosed in 2009 at the age of 19. My kidneys did not fail until I was 30…chemo did not work. I am on the waitlist for a kidney.

karinad

2y ago

Hi! I just got diagnosed in January but I've had symptoms for a few years. I'm 24

abb311

2y ago

Hi! I’m 25! I was diagnosed with SLE years ago in 2018-19 but have had symptoms since I was 8 & no one knew what was wrong with me until my kidneys started to fail 😅

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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