See Alike in...

Alike App

Browser

alikenoelle

762d

I want to connect with other women dealing with Systemic Lupus Erythematosus. Although I'm 8-9 years into this, it's still crazy making sometimes. I want to give advice, share my story, be as helpful as I can. I know it's hard. But we do hard things 💪🏼

Top reply
    • karinad

      734d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • karinad

      734d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • Randa

      736d

      What were the symptoms of kidneys failing? I haven't experienced that yet but it seems to be pretty common for us. I do have enflamed liver with elevated liver enzymes and that's got me freaking out a little

    • tries

      746d

      ✋ And Thank you for sharing ❤️🙏!

    • karinad

      751d

      Wait. I had already commented lol. Want to start a groupchat?

    • karinad

      751d

      Hi!! I'm 24 and just got my diagnosis on January but was diagnosed with Sjogren's last year and have been dealing with symptoms for many years

    • Jocevice

      751d

      I just was diagnosed last week! It’s been crazy and I have so many questions and a lot of stress I’m just trying to figure out my symptoms bc I also have POTS and EDS

    • SaraVirginia

      752d

    • Benisha

      756d

      I am 32, I have been dealing with lupus since I was 18. I got diagnosed in 2009 at the age of 19. My kidneys did not fail until I was 30…chemo did not work. I am on the waitlist for a kidney.

    • karinad

      759d

      Hi! I just got diagnosed in January but I've had symptoms for a few years. I'm 24

    • abb311

      761d

      Hi! I’m 25! I was diagnosed with SLE years ago in 2018-19 but have had symptoms since I was 8 & no one knew what was wrong with me until my kidneys started to fail 😅

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion