Which doctors do you see?

I see a geneticist as needed (1-2 times every year or so). I have a really close established relationship with my primary care provider, who has taken the time to listen and learn about my condition. I also see neuro, endocrinology, pain management, and various ortho specialists.

I too actually have PCP who has h EDS ‘ she is great! Helps me so much. I moved to OK from Houston, big change. I have 15 Dr’s here! 4 orthopedics because they all do something different. Hands, knee, back, neck, etc. it’s ridiculous. I keep a notebook to track them. The least helpful Dr is my Rheumatoid but I love her nurse practitioner. Just use her. But otherwise my Dr’s are great & understanding. But I advocate pretty strongly for myself. You have too to get anywhere! I have been doing this for 16 yrs though.

Where are you located? I live in Boston and see a bunch here.

I see a ton of doctors, but I see Fran Kendall here in Georgia for my EDS diagnosis.