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Catslovesoup

2y ago

What specialist should I see for EDS?

What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.

Your answer

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Quackers

2y ago

Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.
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Rachie

2y ago

I also recommend getting orthopedics for the specific joints you have problems with
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SickCrochetGirl

2y ago

You probably need PT to strengthen your muscles so your joints stay in place better
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lovingluna

2y ago

I got my diagnosis from a rheumatologist
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Tinie

2y ago

I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one
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Maeve

2y ago

A geneticist would be helpful and I would recommend finding an internist for your primary care provider

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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