See Alike in...

Alike App

Browser

Catslovesoup

861d

What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.

Top reply
    • Quackers

      857d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

    • Quackers

      857d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

    • Rachie

      857d

      I also recommend getting orthopedics for the specific joints you have problems with

    • SickCrochetGirl

      860d

      You probably need PT to strengthen your muscles so your joints stay in place better

    • lovingluna

      860d

      I got my diagnosis from a rheumatologist

    • Tinie

      861d

      I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one

    • Maeve

      861d

      A geneticist would be helpful and I would recommend finding an internist for your primary care provider

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion