Catslovesoup

703d

What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.

advertisement

Top reply
    • Quackers

      698d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

    • Maeve

      702d

      A geneticist would be helpful and I would recommend finding an internist for your primary care provider

    • Tinie

      702d

      I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one

    • lovingluna

      702d

      I got my diagnosis from a rheumatologist

    • SickCrochetGirl

      702d

      You probably need PT to strengthen your muscles so your joints stay in place better

    • Rachie

      698d

      I also recommend getting orthopedics for the specific joints you have problems with

    • Quackers

      698d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion