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Pearl09

819d

With vWd what do you struggle with?

Top reply
    • lonecucumber

      766d

      I get easily bruised, occasional nosebleeds, and stomach internal bleeding (when i was younger)

    • lonecucumber

      766d

      I get easily bruised, occasional nosebleeds, and stomach internal bleeding (when i was younger)

    • Leo_Yanofsky

      798d

      how bad is the pain from the procedure?

    • kab

      798d

      It totally changed my quality of life no joke! I am a nurse and I would get them mid shift for hours. I just couldn’t manage it anymore. I scheduled with ent and they took a look and cauterized ! I haven’t had a major one since (5+ years) I still get some bleeding with blowing too hard/ dryness but not nearly the amount

    • kab

      798d

      Yes!! Mine would last for hours. I did it with an ENT !!

    • Leo_Yanofsky

      798d

      oh my gosh that’s a thing you can just do? i’ll have to look into it!

    • kab

      798d

      I use to have nosebleeds with that kind of frequency and ingot my nose cauterized and it’s helped tremendously

    • Leo_Yanofsky

      799d

      constant nosebleeds. i get them multiple times a day, lasting for up to an hour sometimes.

    • Pearl09

      817d

      That's good. What helped your cycle get under control?

    • kab

      817d

      I have low factor 8 ! I honestly don’t have too many issues now that I have cycles under control

    • Pearl09

      818d

      I don't know my subtype but I'm 2 also. Platelet disfunction

    • kab

      818d

      I have type 2n

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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