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NinjaNurse's Post
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NinjaNurse

2y ago

Struggling with Vulvodynia Pain: Seeking Advice

Hi. I was diagnosed with Vulvodynia last year. I’ve been struggling with vulvar pain for the past couple years now. My specialist told me that I should go to a pain management clinic. I already take nerve pain medications so I’m not sure what else they could do for me. What are your thoughts?

Your answer

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Leahhhh

1y ago

Pelvic floor physical therapy and dilators helped me lots! Also going off of birth control pills made a huge difference
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Fayra

1y ago

Have you tried amitriptyline? Not everyone can tolerate it though.
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thick

2y ago

I take the pill and it work for me
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NinjaNurse

2y ago

the pill? You mean the birth control pill? Or estrogen pills for atrophy?
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NinjaNurse

2y ago

I have a pelvic wand from Intimate Rose that massages trigger points, and I do yoga. There’s pelvic floor yoga on YouTube. The Flower Empowered is the name of the channel.
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NinjaNurse

2y ago

I have tried Premarin estrogen cream, but it has a lot of irritating ingredients, so maybe I need to try a compounded estrogen cream without those ingredients
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Avril_Blackrose

2y ago

My doctor gave me estradiol a vaginal cream. Only thing that has helped even though I still get flare ups once/twice a month, way better than before
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NinjaNurse

2y ago

Yes, I do use topical lidocaine. It’s a lifesaver. I love my pelvic floor PT…I wish it wasn’t so pricey, even with insurance. She’s one of the few professionals that has listened to me thus far…
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HeyReese

2y ago

Do you have topical lidocaine? Also, getting into a pelvic floor specialist was crucial for me, because I found other underlying issues
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NinjaNurse

2y ago

I already do physical therapy. I do most of it at home right now because I can’t afford as many sessions as before
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Snwuggl

2y ago

what kind of pt are you able to do at home?? I haven’t found a pt yet but I want to be doing something in the mean time
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HeyReese

2y ago

Hi! For me, my doc ordered a topical gabapentin compound cream & it’s amazing. Also pelvic floor PT :)

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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