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Pinknihari

2y ago

VP Shunt and Headaches: Anyone Else?

Does anyone have a VP shunt and get headaches from sleeping in?

Your answer

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Livingasazebra

1y ago

Yep all the god damn time. If I sleep wrong, or anything of the sort
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Tracks

1y ago

I used to have five VP shunts. Recently found out some of them are not working for me anymore. So now I only have two. So the thing I noticed is when I move too fast I get a headache and when I have a completely flat. I have not noticed getting them from sleeping tho
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Kod

1y ago

I do
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hydroepilepic21

1y ago

I don't know if I'd call it a headache but when I take naps on the couch my shunt hurts then it goes away when I wake up from them.
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tona

1y ago

I have migraine but I've tried everything now I'm on quilpta it helps 💕
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Jessie14

1y ago

No, sleeping makes my migraines go away!
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SarahDenisseGarcia

1y ago

✋✋✋✋
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Ben93

2y ago

I just get sinus headaches, weather changes mostly
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NanN

2y ago

YES!! Changes in temperature and barometric pressure severely affect my pain level AND my headaches. I had a VP shunt until I was 26, then my surgeon did a 3rd ventriculostomy, and I was able to have the shunt removed. My ventricles collapsed onto themselves so my surgeon put in a intraventricular Stent so it would keep the ventricles open. Years went by and I developed a large cyst in the middle of my brain, and I was unable to keep my balance, and had a horrific headache all the time. The ventriculostomy was redone, but I had 2 significant brain bleeds one after the other 2 weeks apart. When It was all redone, 2 weeks later I had a trapped ventricle, and that was when I had a small shunt placed from the trapped ventricle to the ventriculostomy. I got out of the hospital 1 week before my 30th birthday. It's been over 18 years since I have had a brain surgery. I have had periods of time where I had to be on anti-seizure medication, but it apparently resolved and I could stop taking those meds. I pretty much have a headache 24/7 now. I can tolerate it most days, but when the weather or temperature changes, I have whopping headaches and migraines. My headache pain level stays at about a 4-5 continuously, and occasionally it will jump up to a 7-8. I know what a 10 feels like, and I haven't had that in near 19 years.
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Pinknihari

2y ago

thank you for replying.. i dont even have words to say after reading your post.. your doing such an amazing job enduring that pain and living everyday. I really hope one day you are pain free.
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KtKat1

2y ago

I haven't when I sleep in, but I get headaches for several reasons. When the weather shifts especially.
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Pinknihari

2y ago

thanks for replying.. what happens during weather to u?
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Hydrohead1989

2y ago

✋ yes all the time. If I sleep more than 10 hours, I will likely have a bad day.
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Pinknihari

2y ago

omg i thought i was the only one :( i had the ETV done twice before which closed up and now with the shunt i cant sleep in anymore :( has your doctor ever given advice on this?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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