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Pinknihari

707d

Does anyone have a VP shunt and get headaches from sleeping in?

Top reply
    • Livingasazebra

      483d

      Yep all the god damn time. If I sleep wrong, or anything of the sort

    • Livingasazebra

      483d

      Yep all the god damn time. If I sleep wrong, or anything of the sort

    • Tracks

      496d

      I used to have five VP shunts. Recently found out some of them are not working for me anymore. So now I only have two. So the thing I noticed is when I move too fast I get a headache and when I have a completely flat. I have not noticed getting them from sleeping tho

    • Kod

      506d

      I do

    • hydroepilepic21

      532d

      I don't know if I'd call it a headache but when I take naps on the couch my shunt hurts then it goes away when I wake up from them.

    • tona

      532d

      I have migraine but I've tried everything now I'm on quilpta it helps 💕

    • Jessie14

      556d

      No, sleeping makes my migraines go away!

    • SarahDenisseGarcia

      603d

      ✋✋✋✋

    • Ben93

      700d

      I just get sinus headaches, weather changes mostly

    • NanN

      703d

      YES!! Changes in temperature and barometric pressure severely affect my pain level AND my headaches. I had a VP shunt until I was 26, then my surgeon did a 3rd ventriculostomy, and I was able to have the shunt removed. My ventricles collapsed onto themselves so my surgeon put in a intraventricular Stent so it would keep the ventricles open. Years went by and I developed a large cyst in the middle of my brain, and I was unable to keep my balance, and had a horrific headache all the time. The ventriculostomy was redone, but I had 2 significant brain bleeds one after the other 2 weeks apart. When It was all redone, 2 weeks later I had a trapped ventricle, and that was when I had a small shunt placed from the trapped ventricle to the ventriculostomy. I got out of the hospital 1 week before my 30th birthday. It's been over 18 years since I have had a brain surgery. I have had periods of time where I had to be on anti-seizure medication, but it apparently resolved and I could stop taking those meds. I pretty much have a headache 24/7 now. I can tolerate it most days, but when the weather or temperature changes, I have whopping headaches and migraines. My headache pain level stays at about a 4-5 continuously, and occasionally it will jump up to a 7-8. I know what a 10 feels like, and I haven't had that in near 19 years.

      • Pinknihari

        702d

        @NanN thank you for replying.. i dont even have words to say after reading your post.. your doing such an amazing job enduring that pain and living everyday. I really hope one day you are pain free.

        • NanN

          697d

          @Pinknihari ~ Thank you. I have been richly blessed. Pain free for me will have to wait until after I'm gone I'm afraid. It's been a lifetime of this kind of thing. If a person can ever "get used to"constant pain, then I guess I can say I'm used to it.

    • KtKat1

      705d

      I haven't when I sleep in, but I get headaches for several reasons. When the weather shifts especially.

      • Pinknihari

        702d

        @KtKat1 thanks for replying.. what happens during weather to u?

    • Hydrohead1989

      707d

      ✋ yes all the time. If I sleep more than 10 hours, I will likely have a bad day.

      • Pinknihari

        706d

        @Hydrohead1989 omg i thought i was the only one :( i had the ETV done twice before which closed up and now with the shunt i cant sleep in anymore :( has your doctor ever given advice on this?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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