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Namvet's Post

Namvet

Updated 10mo ago

Connecting with Others with Essential Thrombocythemia

I am a 73 year old Vietnam veteran,was in the US Air Force Security Service stationed in Danang RVN 1970/1971. I was exposed to Agent Orange, during my tour of duty.During a pre-op blood test in 2007,I was diagnosed with Essential Thrombocythemia.....Was put on a regimen of Hydroxyurea and will be on it for the rest of my life.I hope to connect with other people with this extremely rare, incurable,but manageable blood cancer......

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Namvet

Along with my diagnosis I have a related Gene mutation (jak2 positive)

lawrah

I have them both too!

Olyvica

Hi Namvet, I just found this app. Nice to meet you virtually. I was diagnosed with ET on January 2019 after a regular blood lab. Then more blood labs were made and I had the result of the Jack2 positive too. My platelets had been under control since I’m taking hidroxyurea for 2 years now. I’m 43 years old

Olyvica

Btw, do you think because your exposure to the agent orange you could be develop this blood disorder?

Essent

I’m a 62 year old lab tech diagnosed with ET, JAK2 mutation . Started hydroxyurea and liver enzymes skyrocketed . Read the side effects and it said liver failure and all other things it can cause! Anybody change from hydroxyurea to interferon?

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