What Treatments Help with Vestibular Migraines?

Also if you have Instagram I wouldn’t mind chatting there since it’s easier, but we can also chat here whatever you’re comfortable with :)

Yeah I feel like since it’s still not many doctors know about it it’s often just put off as anxiety and regular vertigo but that doesn’t help 😭 Aw man hope you’re feeling better now! I don’t think I’ve had an episode that long before , mine are usually on and off throughout the day so not more than a few hours at a time I think but they happen very often so it’s almost like 24/7 🤡💀

Hope you’re doing well!

(Also sorry for disappearing, had a 5 day episode lol)

and then when I was in the ER a couple times, doctors always thought it was just anxiety too or regular vertigo

I also thought I was making things up 😭😭 most of my family believed I was just being too anxious about everything and that it was going to go away quickly

Yeah I was diagnosed end of 2016 and it took almost an entire year of going to doctors for them to figure it out, so I definitely relate to you, I thought I was crazy or just making the symptoms up somehow??? Many people don’t get diagnosed and it’s because it was only recently given criteria for diagnosing in 2014 I believe, so when I got it not many doctors were even aware of the criteria so I think that’s why it took so long to figure it out. I’m just glad more people are hopefully being helped quicker as it gains more awareness

My worst fear when this all started was when I had no idea what it was & thought I was literally dying, I’m sure you can relate a little 😭

Same here! It helps so much to talk to others with it. I feel like the more present people are to talk about it, the less likely others get left behind and undiagnosed

I completely feel you on remembering to train your body 🥲 Yes I have brain fog a lot of the time, and I don’t really ever get “headaches” with mine it really is just the vestibular symptoms which are so uncomfortable for me Idk why I hadn’t thought until recently to look for other people with the condition to talk to but I’m glad I did

I’m not entirely sure what started them, but I have a hunch it’s something to do with my hormones. I take venlafaxine and birth control to manage everything. venlafaxine was so hard to get through at first, def understandable that it wasn’t something you wanted to deal with

I started getting vestibular migraines about a year and a half ago, I started experiencing extremely bad PPPD from it that made me feel like I was constantly in a state of brain fog. Eventually realized I was having migraines, it was so much different than I had believed migraines could be. Mine doesn’t even necessarily hurt, just a large numbness on the side of my head

Omg I feel you on the quarantine thing. I have a terrible habit of sitting in the dark, but then it makes the dizziness I experience worse as well. It’s such a hassle to remember to get up and train your body to not give into it

Oh also quarantine screwed me over cuz I just stayed inside all day not moving so my body’s natural adjustments to dizziness worsened a lot so it’s like I’m starting from level one when I first got it again Since I’ve been moving more in the last few months tho I’ve been able to do more

I am curious your journey with vestibular migraine?

Hi! Thanks for messaging me :) It took me an entire year going to the different doctors for them to finally figure out it’s vestibular migraine that was end of 2016 and I only tried one medication venlafaxine which I could not handle, and since it had been a long year I was just mentally not strong enough to try any medication I was just done honestly, so I haven’t been to the doctors since and I’ve moved a lot and had no money so even tho I’ve wanted to go in recent years I haven’t been able to. So the only medication I take is dimenhydrinate for nausea everyday because otherwise without it I can’t do anything or go anywhere I’ve been wanting to start some vitamins and go on a migraine friendly diet but again I don’t have any money after bills so I can only afford like ramen and bread and eggs so that doesn’t help and then can’t afford vitamins