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greycat

829d

What kind of treatments have helped you deal with Vestibular Migraines the best?

Top reply
    • eggoweggo

      821d

      Also if you have Instagram I wouldn’t mind chatting there since it’s easier, but we can also chat here whatever you’re comfortable with :)

    • eggoweggo

      821d

      Also if you have Instagram I wouldn’t mind chatting there since it’s easier, but we can also chat here whatever you’re comfortable with :)

    • eggoweggo

      821d

      Yeah I feel like since it’s still not many doctors know about it it’s often just put off as anxiety and regular vertigo but that doesn’t help 😭 Aw man hope you’re feeling better now! I don’t think I’ve had an episode that long before , mine are usually on and off throughout the day so not more than a few hours at a time I think but they happen very often so it’s almost like 24/7 🤡💀

    • greycat

      823d

      Hope you’re doing well!

    • greycat

      823d

      (Also sorry for disappearing, had a 5 day episode lol)

    • greycat

      823d

      and then when I was in the ER a couple times, doctors always thought it was just anxiety too or regular vertigo

    • greycat

      823d

      I also thought I was making things up 😭😭 most of my family believed I was just being too anxious about everything and that it was going to go away quickly

    • eggoweggo

      828d

      Yeah I was diagnosed end of 2016 and it took almost an entire year of going to doctors for them to figure it out, so I definitely relate to you, I thought I was crazy or just making the symptoms up somehow??? Many people don’t get diagnosed and it’s because it was only recently given criteria for diagnosing in 2014 I believe, so when I got it not many doctors were even aware of the criteria so I think that’s why it took so long to figure it out. I’m just glad more people are hopefully being helped quicker as it gains more awareness

    • greycat

      829d

      My worst fear when this all started was when I had no idea what it was & thought I was literally dying, I’m sure you can relate a little 😭

    • greycat

      829d

      Same here! It helps so much to talk to others with it. I feel like the more present people are to talk about it, the less likely others get left behind and undiagnosed

    • eggoweggo

      829d

      I completely feel you on remembering to train your body 🥲 Yes I have brain fog a lot of the time, and I don’t really ever get “headaches” with mine it really is just the vestibular symptoms which are so uncomfortable for me Idk why I hadn’t thought until recently to look for other people with the condition to talk to but I’m glad I did

    • greycat

      829d

      I’m not entirely sure what started them, but I have a hunch it’s something to do with my hormones. I take venlafaxine and birth control to manage everything. venlafaxine was so hard to get through at first, def understandable that it wasn’t something you wanted to deal with

    • greycat

      829d

      I started getting vestibular migraines about a year and a half ago, I started experiencing extremely bad PPPD from it that made me feel like I was constantly in a state of brain fog. Eventually realized I was having migraines, it was so much different than I had believed migraines could be. Mine doesn’t even necessarily hurt, just a large numbness on the side of my head

    • greycat

      829d

      Omg I feel you on the quarantine thing. I have a terrible habit of sitting in the dark, but then it makes the dizziness I experience worse as well. It’s such a hassle to remember to get up and train your body to not give into it

    • eggoweggo

      829d

      Oh also quarantine screwed me over cuz I just stayed inside all day not moving so my body’s natural adjustments to dizziness worsened a lot so it’s like I’m starting from level one when I first got it again Since I’ve been moving more in the last few months tho I’ve been able to do more

    • eggoweggo

      829d

      I am curious your journey with vestibular migraine?

    • eggoweggo

      829d

      Hi! Thanks for messaging me :) It took me an entire year going to the different doctors for them to finally figure out it’s vestibular migraine that was end of 2016 and I only tried one medication venlafaxine which I could not handle, and since it had been a long year I was just mentally not strong enough to try any medication I was just done honestly, so I haven’t been to the doctors since and I’ve moved a lot and had no money so even tho I’ve wanted to go in recent years I haven’t been able to. So the only medication I take is dimenhydrinate for nausea everyday because otherwise without it I can’t do anything or go anywhere I’ve been wanting to start some vitamins and go on a migraine friendly diet but again I don’t have any money after bills so I can only afford like ramen and bread and eggs so that doesn’t help and then can’t afford vitamins

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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