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R2T2

2y ago

Struggling with Breathing Difficulty: Could it be VCD?

Has anyone here had VCD that has impacted their breathing? I’m still undergoing testing but will receive my final diagnosis at the end of the month. It seems likely that VCD is a culprit in my breathing difficulty and I have a history of vocal cord issues 🤦🏻‍♀️

Your answer

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Emmab22

2y ago

yup, hate it
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luminary

2y ago

I was diagnosed last year and mine constrict so that for periods of time I can't breathe, it gets worse when I panic so I try to remain calm, it typically makes it get better whenever that happens
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LynnM

2y ago

I sent you a message, you definitely sound like me
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luminary

2y ago

I should clarify this is only when it's a light episode of it.
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Rainey

2y ago

I had breathing difficulty and hoarseness. Inhaler didn't relieve breathing issue. After ENT did a scope I was referred to otolaryngologist and was diagnosed with vocal cord paralysis due to having a virus in March 2020 very sick. Then ended up with bells palsy that affected my vocal cord.
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Marshie

2y ago

There is a surgery where they put a stint in your vocal cord. My doctor was at John's Hopkins.
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keallei

2y ago

I was diagnosed only last year. And I think it might be a placeholder diagnosis until we find out more. It used to be exercise induced asthma but I have no trouble exhaling. It’s breathing in during exercise that is the big problem. So far I just keep taking my inhaler 30 and 15 minutes before planned exercise like a walk or hike.
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Aureliamae

2y ago

Yeah, very much so. I can’t play flute anymore which is a bummer.
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Salbright

2y ago

Ugh what did you get it from?
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Kk21

2y ago

I’ve had VCD for some years now but just had a diagnosis last week! It 100% impacts my breathing on my day to day life. The only thing that helped me personally was Flonase believe it or not. It helped with the aeroallergens that would cause my issues. However, whenever I have a laughing fit, it tends to come strong unfortunately.
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Jules26

2y ago

I’m with PAP112, I was in and out of the hospital for years thinking it was asthma, when really it was VCD. Much less mysterious and easier to manage!
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Salbright

2y ago

Yeah :( it’s really worrying me, along with the speaking difficulties. Wheezing and coughing especially at night.
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PAP112

2y ago

Yes! I was misdiagnosed for asthma and a bunch of other lung/heart issues before we finally realized it was VCD

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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