Unknown Autoimmune Disease Causing Blindness

based on the link lebers is painless? That might be why he didn't suspect that. I went and saw him because I have flares of intense pain behind my eyes, and jaw area, I thought it was tmj. I planned to see neuro for botox injections for the pain but something told me to get my eyes checked and sure enough my the nerve behind my left eye was very swollen. The ophthalmologist made a huge deal about it and was suprised I passed the color test and my vision wasn't already effected. He ordered a Stat MRI that I had done but don't know how to read so I'm waiting to see the neuro ophthalmologist and its taking a long time because my old pcp is crap and they kept rejecting the referral so I had to change pcps. (When it rain it pours)

Sorry I know you are Asteria. The name above is because of my auto-correct.

Asterisk— I’m so sorry. I have some questions. What is your vision like? Is it very blurry? Do you have peripheral vision? Do your eyes hurt? When I first began to lose vision I was wrongly diagnosed several times. They finally diagnosed me with MS, which cause optic neuritis….the optic nerve tells your brain how to see and my nerve is damaged because of the MS. How do you know it is your immune system doing the attacking? Is that something a doctor told you? Do you have any other symptoms besides your vision loss? I’ve been through vision rehabilitation and through that I’ve met lots of people with different eye conditions. I am not a doctor but I have friends with all kinds of eye conditions, so I might can help with information. The one thing I want to share is that there is life after losing vision. It’s terribly scary to lose vision but thankfully we are in an age where there is all kind of help available. There are all kinds of services that can help you. How old are you? I’ll try to help if I can.