Seeking Help for Unexplained Pain and Symptoms

@Igglepiggle Yes, I’m definitely not gonna forget about that either. My new doctors nurse did call me this morning. Negative for Lyme, but she said something about one of the other test that she did on me showed something that could indicate mixed connective tissue disease. She’s waiting on my previous slack doctors office to send my medical history and all previous blood test. She requested them Last Thursday and obviously they are playing around on sending them to her.

@DalzellGirl afraid as you age things like autoimmunity get missed as it can be normal for people in their 50s to have a mildly positive Ana or early kidney disease but it can also not be normal and so shouldn’t be ignored, and yes it’s awful how they don’t actually care for mental health my mum told them how I had been self harming for years and was very close to attempting suicide and they did nothing, we have to pay for therapy privately! And going through school I was struggling with all this plus adhd autism and dyscalculia I had 2 nervous breakdowns and suddenly couldn’t keep up with my grades and the school refused to help me which is illegal by the way!! I was forced to drop out, the world is so broken. To be honest the government would rather we died, less sick people in their way so getting help is made to be as challenging as possible, hope you can find someone to help you.

@Seae Thanks so much for responding!!! Wow, that’s unreal with the symptoms!!! Yes, I have thought about Lyme, because I’ve lived in SC all my life and as a child and adult, I’ve picked a lot of attached ticks off of me. I watched a documentary the other day called Under our skin, it’s on YouTube and Pluto. I was blown away of all the people that were diagnosed with fibromyalgia, ms, lupus, and many other diseases to finally find out that it was Lyme. I just don’t think I have fibromyalgia, especially with the weight loss. I’ve been leaning more towards Lyme or Lupus and I may be wrong and it could be something totally different. It would really help if I could just ever get a doctor to listen.😡 I’m trying to find one of those doctors, because I heard they were great, but its hard in SC. We are one of the most backwards state!!!

@Seae all these illnesses people are suggesting completely overlap there’s no way of guessing without hard evidence like positive blood tests

@Drewsdad08 Yes, I had some nodule’s on my thyroid and they removed half of it back on Dec. 9th. They thought I would gain weight and have to put me on thyroid medication, but even with half of my thyroid my level are normal with no weight gain. 🤷🏻‍♀️

@DimDim Thanks for responding, no they have never tested me for it and never mentioned it. I can’t even get enough time with the doctor to tell him all my symptoms. All they care about is money and if regular blood test come back ok. I’m definitely gonna be calling and finding another doctor.

@DimDim Also some PTSD symptoms in there which usually are conjoined.. have you been through a/a number of traumatic event(s) in the past?

@Igglepiggle Thanks for your response and information!!! No, I’ve never even heard of ds dna? I was hurting so bad today I even went to the hospital emergency room and was basically booted out. I handed the doctor a list of all my symptoms and told him I thought I had something more than fibromyalgia. He just rolled his eyes and said I can’t go through this list and then told me he could not help me and that’s not what the emergency room was for. He said he was sending a referral to pain management. I started crying and said, I would rather have a referral to a rheumatologist. Nope, you can go to pain management and then walked out. 😥😡

@sorenachy Thank you so much, I really appreciate that!!!

@SleepyLizard Thank you so much for responding. I’ve actually gotten more info on this from everyone than what I’ve ever gotten from my doctor. None of my medicine works. They have me on ibuprofen, gabapentin, tramadol, for the fibromyalgia and none of it helps. They also had me on an antidepressant cymbalta. I played the devil getting off the cymbalta, because it did nothing for me. I looked up ME/CFS, wow, I have just about all of those symptoms too. Thank you for providing that to me, because I’ve never heard of it before. I know I’ll go to work and by the time I get off I’m hurting so bad I can’t stand it. I’ve never been sensitive to sounds before, but I sure am now. If I’m watching tv and hear noise in the background it irritates so bad. Running water, someone eating, a car going by with music. I have tinnitus in my left ear and I have to sleep on the couch with the tv on to drown out the static noise in my ear. I freeze one second and hit the next. I’m just leery about the fibromyalgia, because this has been going on for years and nothing helps. My friend that was a medic in the Air Force said that many doctors will use fibromyalgia as a diagnosis, if they can’t figure it out by blood tests. I believe that to be true because my last doctor would never spend more than 10 minutes at a time with me and say well your bloodwork looks okay so we are gonna just go by that. 😡

@S0phoe Thank you so much for your response, yes the weight thing threw me off too. They thought that it was my thyroid, but half of it has now been removed and they thought that I would have to go on thyroid medication and gain weight, but nope. Thyroid level is good and still have not gained any weight. Weird thing I forgot to mention, as bad as my pain is all the time, when they put me to sleep to remove half my thyroid on Dec. 9th., I came home and for 3 weeks all my pain that I have everyday, that I’ve had for years completely disappeared. I had forgotten how it felt to feel normal, because I’ve not gone a single day in years without pain. I was crying, because I could actually get up do stuff and felt like baking cakes and cookies. How do you get put to sleep and the excruciating pain that you go through everyday just disappear like it never was. 🤷🏻‍♀️ After 3 weeks it came back on me like a ton of bricks though and has been that way since.

@anemone Thank you so much for responding. Yes I’ve had covid twice, but I had all this before covid, it’s just getting worse. I also forgot to mention that I’ve had Mononucleosis twice. Once when I was little, 1977 and once in 2019. Sorry about that, I have so much going on with me I forget things. I’m trying to find a doctor at this time, I’ve never even seen a rheumatologist. They tried to send me to pain management, but I can’t even get in until August 7th. None of my medication works for me at all. I’ve gotten more responses and answers from y’all than my doctor and I truly appreciate that.

@Neverlandgirl Thank you so much for enlightening me on that. I didn’t even think of that, but you’re right, I probably need to find a female doctor, because mine which is male, dismisses me from the get go. I get the, well your blood work looks ok, so we are just gonna go with that. 😡 Then leaves the room so I can come back and spend money and another 10 minutes to hear the same thing over again in 3 months!!! I’m so aggravated and angry, because I know I’m not getting anywhere. This has been going on since the beginning of 2019 and I’m exhausted and broke.