Coping with an Undiagnosed Condition

Does anyone else have a yet undiagnosed condition? How do you process it mentally?

Your answer

hazyeclipse

2y ago

Yes. I don't know how to process it to be honest. Sometimes it gets to me and I feel this terrible despair - because so far nobody can figure it out, and I'm dealing with dozens of extremely uncomfortable, and in some cases, bizarre, unheard of symptoms (like to the point I can't even find a case like mine when searching on the internet). And the worst part - I don't have the resources (especially money) to do much about it, or the physical ability to be able to get the resources

rarerambo

2y ago

I’m sorry to hear that—but if it helps you feel better, you are not alone. I too have searched my symptoms on the internet to no avail. The thing that keeps me going is knowing that I am quite literally one in a million, as are you!, and the bright side to all this is that hopefully we can help make meaningful contributions to the world of science and healthcare… just by existing!

Nataliejean

2y ago

I’m in a similar situation. I spend hours reading case studies of people with issues like mine, trying to find something that makes sense. My last doctor told me to go to the Mayo Clinic if these next few interventions don’t help.

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