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FayeR

862d

Hi, has anyone been diagnosed, then undiagnosed with APS? This is all so confusing. I also have Sjogrens.

Top reply
    • HotMess426210

      792d

      Antibodies in blood tests can be inconsistent. If you test positive for the antibodies once and then have another test that’s negative it doesn’t necessarily mean you don’t have the antibodies it just means the levels have fluctuated especially if you’ve been on treatment. My specialist diagnoses by running samples every 2 months for 6 months and if you test positive more than once then you have the antibodies and a diagnosis

    • HotMess426210

      792d

      Antibodies in blood tests can be inconsistent. If you test positive for the antibodies once and then have another test that’s negative it doesn’t necessarily mean you don’t have the antibodies it just means the levels have fluctuated especially if you’ve been on treatment. My specialist diagnoses by running samples every 2 months for 6 months and if you test positive more than once then you have the antibodies and a diagnosis

    • FayeR

      862d

      Hi, sounds similar to me, leaves me without knowing what to think or be re tested? I guess anything autoimmune can effect the test results. Thanks for responding 🤗 💕

    • Jewels18

      862d

      I think maybe I have. At first the IGG antibodies came back high which was the diagnostic marker for the condition and now I have almost normal levels of IGG meaning that I just barely fit the diagnostic criteria.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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