Undiagnosed Stomach Problems for 12 Years

Look for the weird symptoms which aren't so well known as well. My colonoscopy was clear and the dietitian was asking about cracked dry lips, sore spots on my arms, mouth ulcers, turns out these can all be linked! My original symptoms were vomiting and nausea, diohrea (I can't spell), constipation and stomach cramps. I was in a flare for 8 months then got lucky with a Dr and consultant who pushed for investigations. It took a pill cam to diagnose though as my Crohn's is in my small bowel and the colonoscopy didn't reach it. So basically if your colonoscopy is clear keep fighting for investigations, Crohn's is mouth to butt.

I would also push for an MRI scan as they missed my diagnosis through a colonoscopy and endoscopy but was very clear it was crohn's through MRI! Don't lose hope if you don't hear back from it keep pushing for answers! X

Cimmy, well, whatever any of us say until you get it in writing…. Yes, it sounds like IBD, UC or Crohn’s and while there isn’t a lot of data on direct genetic paths IBD can run in families. My grandfather likely had IBD but he died I the 60s. Start reading about treatments, I always told my support group members, “If you have to have IBD this is a great time to have it.” I had Crohn’s, lost my colon, almost died, yadda, yadda, for 40 years before getting on biologics and for me it was miraculous. Make like a badger! Don’t let go of life, grip it and hang on.

Yes I have Crohn’s and it sounds like it could be.