Undiagnosed Stomach Problems for 12 Years

So i have been back and forth to so many doctors since this started, which was at least 12 years ago. iv had blood tests done, poo samples taken, i even went to a gyno because i thought i might have something like endometreosis. the gyno said it definitely sounds more like a gut problem tho and referred me over to a gastro specialist i think it is. im still undiagnosed, but im finally going fir a colanostopy sometime in the upcoming 3 months, my nan and uncle both have crohn's. iv always struggled with stomach problems, but the cramps as of the last few years have gotten a whole load worse, latley i feel like anything i eat upsets my stomach as well. iv always had problems of having to pee way to frequently. does any of this sound like crohn's to those of you who are diagnosed???

Your answer

Fantasyland

1y ago

Look for the weird symptoms which aren't so well known as well. My colonoscopy was clear and the dietitian was asking about cracked dry lips, sore spots on my arms, mouth ulcers, turns out these can all be linked! My original symptoms were vomiting and nausea, diohrea (I can't spell), constipation and stomach cramps. I was in a flare for 8 months then got lucky with a Dr and consultant who pushed for investigations. It took a pill cam to diagnose though as my Crohn's is in my small bowel and the colonoscopy didn't reach it. So basically if your colonoscopy is clear keep fighting for investigations, Crohn's is mouth to butt.

Cimmy

1y ago

seems like a real pain to diagnose, its already been so long without answers. Really hope this comes up with something. Hope since uv been diagnosed life is a little easier

Jubly27

1y ago

I would also push for an MRI scan as they missed my diagnosis through a colonoscopy and endoscopy but was very clear it was crohn's through MRI! Don't lose hope if you don't hear back from it keep pushing for answers! X

Cimmy

1y ago

its crazy how hard it is to get a diagnosis

Foxlover

1y ago

My Crohn’s is active right now and I have to poop all the time. It drains my energy sometimes and sometimes I’m not able to get exercise. I hope they get you on a medication soon.

Bobbing56

1y ago

Cimmy, well, whatever any of us say until you get it in writing…. Yes, it sounds like IBD, UC or Crohn’s and while there isn’t a lot of data on direct genetic paths IBD can run in families. My grandfather likely had IBD but he died I the 60s. Start reading about treatments, I always told my support group members, “If you have to have IBD this is a great time to have it.” I had Crohn’s, lost my colon, almost died, yadda, yadda, for 40 years before getting on biologics and for me it was miraculous. Make like a badger! Don’t let go of life, grip it and hang on.

Cimmy

1y ago

yer im hoping something comes up in this colanoscopy so i can see whats up, im over dealing with whatever is wrong with me and getting no help. Whats UC?

Nay_Nay

1y ago

Yes I have Crohn’s and it sounds like it could be.

Cimmy

1y ago

it would be terrible to have it, but great to finally be diagnosed if i do so i can finally get help and treatment

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