See Alike in...

Alike App

Browser

Undiagnosed Illness: Seeking Answers and Support

stxrberrym00n

299d

does anyone else have a ton of really weird symptoms that no doctors can figure out, even though you have proof of them? i have been sick since i was around 13-14 and i am going to be turning 21 soon. my symptoms have gotten worse and new as i get older. my health has ruined my life and i am not able to do much of anything anymore. i recently went to a renowned hospital and only left with more questions and no answers. they were all concerned about my symptoms but just couldn’t figure it out what the root of the problem was? has anyone else experienced this or know something i can do next?

6

11

11

Diabetes Type 2 (T2D)

Malaise & Fatigue

Erythromelalgia

Headache

Chronic Pain

View all
Top reply
    • Kaislyn

      296d

      @stxrberrym00n search on google about acupuncturists in your area and read all their reviews, you pick which one you think is best based off of what you gather. When you call to make an appointment, they may ask you what for, and you can tell them joint pain, gut issues, you can literally tell them all your issues and the acupuncturist will know what to do :))

      0

      Reply
      Chat
    • chocolatetruffle

      299d

      I'm in the same boat. I have a lot of really weird symptoms with no explanations for them. Some of them are things that I've never heard of anyone else having before and my doctors not having even a clue of what could be causing them. It really sucks. Unfortunately I have no idea as to what can be done next, but I do get it. What kind of symptoms are you having? Feel free to pm me as well.

      0

      Reply
      • stxrberrym00n

        299d

        @chocolatetruffle sorry to hear you are experiencing the same things :( i have a lot of symptoms so i won’t list them all, but in terms of weird/strange symptoms i would say: my gums, roof of mouth, and nails are bright blue- my knees, face, hands, feet, and ears turn neon red and feel extremely hot as if they are in boiling water, and i am not gaining weight but yet i continue to get stretch marks everywhere. what kind of symtpms do you have?

        0

        Reply
    • minionmaniac

      299d

      Me too, I have been sick since age 7 getting progressively worse and I'm now 21. I understand the frustration of no concrete answers! The next step for me I think, is going to a functional medicine doctor. Is that something you have thot of? They are very thorough and spend up to 4 hours with you for first appointment.

      1

      Reply
      • stxrberrym00n

        299d

        @minionmaniac i’m sorry to hear you have been going through this for so long :( i have never heard of a functional medicine doctor so i will look that up and see if any are near me! thank you!

        0

        Reply
    • PEMprincess

      299d

      https://meassociation.org.uk/product/explaining-mecfs-to-other-people/ Try this link, click “download now” & then see pages 7 & 8. There’s a checklist that may give you an idea of whether or not you have CFS/ME. Message me if you have any questions or want to talk more. I’m so sorry that you’re hurting. You will get your answers soon. You’re not alone ❤️

      1

      Reply
    • PEMprincess

      299d

      Maybe primary care physician can test blood for diabetes, iron issues, Vitamin D or B12 deficiencies, and for ANA antibodies.

      0

      Reply
    • PEMprincess

      299d

      Look up the symptoms for CFS/ME, Fibromyalgia, IBS (for bowel & appetite issues). Other things you can look into are MS, Lupus, POTS, getting a thyroid ultrasound, seeing an endocrinologist to test issues with cortisol levels.

      0

      Reply
      • stxrberrym00n

        299d

        @PEMprincess i have talked to my primary doctor about CFS and she thought i may have that or fibromyalgia. i have been tested for IBS and i don’t have it. this year i got a full 12 vials of blood tested for any autoimmune diseases and all were negative. only things flagged were my white blood cells were quite high, as were my platelets. i’ve been tested for my thyroid numerous times and everything is always normal. i can’t say i have ever had my cortisol levels checked though so i will look into it. thank you! i’ve done so many things throughout the years with still no luck :(

        0

        Reply
    • Kaislyn

      299d

      Mine started around the same age as you and I’m almost 23 with minimal answers. I get thrown basic diagnosis terms, just for another doctor to say the other one was wrong. What I found to be extremely helpful was, I started with my diet. I didn’t realize it at the time but a lot of my body pain was connected to the food I ate. Anything that had been processed or had lots of chemicals made me sick. To this day if I eat processed food, my joints hurt like hell for a day or two. I also turned to a lot of holistic things like essential oils, and I saw an acupuncturist and that changed the game for me! Let me know if you have any questions and I would be glad to help!

      1

      Reply
      • stxrberrym00n

        299d

        @Kaislyn thank you for your reply!! i know a change in my diet would help dramatically, but my bowels do not work at all so i’m not able to eat much or have an appetite, therefore i usually tend to eat really bad junk/processed food because i know it’ll taste good and be quick to make. i have thought about an acupuncturist, but how did you go about finding one and what did you tell them?

        0

        Reply
        • Kaislyn

          296d

          @stxrberrym00n search on google about acupuncturists in your area and read all their reviews, you pick which one you think is best based off of what you gather. When you call to make an appointment, they may ask you what for, and you can tell them joint pain, gut issues, you can literally tell them all your issues and the acupuncturist will know what to do :))

          0

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion