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illbumblebee

1y ago

Undiagnosed Illness - Seeking Advice

I don't know what's wrong with me. no doctor has been able to work it out in the past but I am working up the courage to see a new doctor but I want to have some idea what it could be so I can better advocate for myself. At first I thought chronic fatigue but the pain and nausea I experience don't align with that then I thought pots but I've tried the poor man's tilt table test multiple times and my heart rate remains normal, possibly thinking ehlers danlos but idk it just doesn't feel right. I'm gonna list some of my symptoms that I can think of off the top of my head of anyone has any ideas or things to look into it would be much appreciated. symptoms: Dizziness, lightheadedness especially after eating, brain fog, fatigue, insomnia, joint pain, muscle pain, frequent and painful pins and needles feeling, overheating/ trouble regulating temperature, random abdominal pain, headaches, heart palpitations, nausea

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stxrberrym00n

1y ago

have you ever had endocrine testing? or autoimmune testing? it also sounds like it could be maybe autonomic dysfunction. which POTS is an example of, but there are other forms of autonomic dysfunction and the tests are different than a tilt table test. i wish you the best in figuring out what it is. i’ve been on a road to discovery for about 8 years, so i know it’s hard and frustrating 💛

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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