Struggling with an Undiagnosed Illness

I've had my symptoms for over a year now, but no real diagnosis. I've even offered multiple diagnoses that I thought might fit, but the doctors won't name my condition and that makes it hard to talk about. Anyone experiencing similar push back?

Your answer

LittleElf

1y ago

I bought the ‘wellue’ heart monitor from Amazon & caught my episodes of crazy palpitations & fast heart rate, took it to my cardiologist and was diagnosed with SVT & VT. If you want any more info about my journey, please feel free to DM me x

aIex

2y ago

I would probably ask a cardiologist to put you on a 30 day event monitor to catch something. It's a bit if a pain but worth it

Feather

2y ago

I know what you mean. My doctor thought I had an afib. But I have SVT’s and PVC’s. They say they are common and benign but I also have a fast rate rate. Which would spike a panic attack so they put me on a beta blocker and that seems to help. Have you seen a cardio?

AwkwardMoth

2y ago

It's definitely fast, but not ridiculously so. But when it races it can last anywhere from a few minutes to hours. Occasionally it does flutter or I get what I call bubbles, which I'm not sure how to explain other than it feels like there's bubbles popping in my chest

Brownie1112233

2y ago

how fast is not ridiculously so? Lol because svt can become worse over time, mine started with pregnancy went away and came back with my second pregnancy and never went away. It took them 2 years to even diagnose me because they could never catch me having the episode at first

Feather

2y ago

Does your heart beat too fast or can you feel it flutter or skip?

UnicornGranny

2y ago

I’m sure it’s more so they are not sure what it is and don’t want to misdiagnose you. Just know it’s quite common for strange diseases to take some time to diagnose. It took me about 6 years to get diagnosed with RA.

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