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Rlball

657d

Has anyone been told they have an autoimmune disorder but just get bounced from specialist to specialist with no answers?

Top reply
    • Rlball

      657d

      I am a nurse and I hate our healthcare system. It's not about the patients. It used to be, but those days have passed

    • MTB1960

      657d

      What’s insulin resistant ? I have porphyria

    • MTB1960

      657d

      I was told that years ago only to find out I had a metabolic disorder Now I have NETs to :(

      • smMink

        657d

        @MTB1960 it's insulin resistant. Go to YouTube and look up Dr. B. Bikman. He can explain it all.

    • Wonder_Woman

      657d

      So, my pain doctor thinks I have auto immune! Now what do you all suggest I do next!

    • Fully.Healed

      657d

      Autoimmune is simply an overly toxic body that is nutrient void. We have to live a detox lifestyle, heal our digestive system and get better nutrition in order to reverse the disease and heal

      • MTB1960

        657d

        @Fully.Healed any thoughts on probiotics for the gut?

    • Rlball

      657d

      I am a nurse and I hate our healthcare system. It's not about the patients. It used to be, but those days have passed

    • Ley

      657d

      I’ve gotten a positive test for autoimmune but they don’t want to do further testing after the test they wanted to do were done. They won’t even send me to any other specialist.

    • SunnyPainter

      657d

      Yes, I’ve been told by two specialists that I have RA. Then told by two others that I only have the RA factor but it’s likely something else. I also have the ankylosing spondylitis marker but the doctor needed an MRI to prove it. The MRI didn’t prove it but showed other issues. This has been a 16 year process and I still have no idea exactly what’s wrong with me.

    • Osnapitzkat

      657d

      Yup

    • Abby0427

      657d

      Yes! I was first diagnosed with rheumatoid arthritis and sent to a specialist who said “oh no it’s just hyper mobility syndrome” and sent me on my way. Still in pain everyday without anything so just managing at this point 😅

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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