Need Help Understanding Fibromyalgia

I also really enjoy the fibromyalgia podcast by tami stacklehouse she is a fibromyalgia coach who has fibro herself

For me lifestyle changes have made the biggest difference, but I also take low dose naltrexone and lyrica plus a bunch of supplements. Chiropractic, acupuncture, regular massages and physical therapy have helped me. I also get routine iv hydration technically for my hypermobile ehlers danlos, but I feel it helps my fibro as well. Cutting inflammatory foods out of my diet was a game changer. I cut out gluten, dairy, corn, most processed foods, limit sugar, and only eat animals that are not farm raised because the antibiotics and hormones they feed farm raised animals irritate my system. Making sure I move my body a little bit every day, getting enough sleep, managing my stress levels also help a lot. I have a device that I love that helps my pain. It’s called an oska pulse and it used pulsed electromagnetic frequency to change how things like water, nutrients and toxins move in and out of your cells. This link explains how it works. https://www.oskawellness.com/pages/how-it-works I also love compression socks, my heating pad, tens machine, weighted blanket, and shiatsu massager. Making sure you’re wearing good supportive shoes helps. Making sure you have good comfortable chairs to sit in and pillows and mattress in bed that support your body. I also love Epsom salt body wash and bath salts. There’s one that’s meant for chronic pain and fatigue that I use often. I find I feel worse when I’m cold as well so I make sure to always have enough layers that I’m not shivering and tending my muscles. A lot of people with fibro also have comorbidities. Sjogrens and sleep apnea are really common. So is digestive issues. I take turmeric supplements (it absorbs better if it also has ginger or black pepper), magnesium, methyl folate (because of my MTHFR gene mutation), vitamin b12, vitamin c, and vitamin d. Fibro has its own symptoms, but it also amplifies other conditions. So managing any other health conditions you have will help your fibro.

all I was told when I was diagnosed is that it's a disease of the cns

According to a recent study, it is most likely autoimmune! That doesn’t rule out what others are saying, but it’s much more likely an autoimmune condition than it is connective tissue or neurological. https://spondylitis.org/research-new/fibromyalgia-might-be-an-autoimmune-disorder-a-new-study-says/ here is an article that goes over the study results. I suggest reading the actual study though, it’s very interesting.

Fascia pain only explains tender points and it's because the fascia is irritating the nerves. The reason this causes pain is BC in fibro our nerves basically send way too many pain signals

If you have any more questions feel free to DM me

An MRT specialist is trained in a specific type of message that targets your fascia to break up the adhesions that form and then realign your muscles as sticky fascia can pull them out of place. It’s not your typical relaxing message and can be a bit painful to the normal person but with your pain tolerances it can be relaxing in the sense that your get relief

However with fibro the fascia like to be sticky and form adhesion and is prone to inflammation. The inflammation is what causes the funpark of nerve sensations and the adhesions are why we’re constantly pulling muscles for… nothing. Biggest things are to 1. Try a nerve suppressant such as gabapentin 2. Hydrate to keep your fascia as mobile as possible 3. Gentle stretching and light exercise to keep your fascia moving and lubricated 4. Eat an anti-inflammatory and/or Mediterranean diet 5. Find a Myaofascial Release Therapy (MRT) specialist

Not really. It’s more like a connective tissue disorder that specifically targets your fascia. If you google a fascia map image you’ll see why that’s an issue. It’s what allows our muscles to easily glide over each other without sticking