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Talia0985

653d

I (18F) just got diagnosed with UC. I'm slightly worried because I don't know what to expect for the future. Those who have had UC for a decent amount of time, does it get better/easier to live with? And do you have any kind of tips or advice that you wish you had at the start of your healing journey? Anything would help, I don't know much about UC.

Top reply
    • Allysinss

      643d

      Hi I was 17 when I got diagnosed. Pills didn’t really stay in my system so I do Remicade infusions now & since then I’ve been a complete healthy person. I do still deal with stomach cramps here & there but I’m still able to live like a normal person. I’m 22 now & havnt had a flare since my diagnosis

    • Allysinss

      643d

      Hi I was 17 when I got diagnosed. Pills didn’t really stay in my system so I do Remicade infusions now & since then I’ve been a complete healthy person. I do still deal with stomach cramps here & there but I’m still able to live like a normal person. I’m 22 now & havnt had a flare since my diagnosis

    • KimmyRet

      649d

      I'm sorry. Was has about your age when I was diagnosed. I had so many plans and things I want to do the I felt drifted away when I got sick. I felt my goals were no longer reachable. But that's not try. It's been 6 years since I was diagnosed and I really love my life. I have an amazing husband a beautiful dog. My symptoms haven't gotten easier, but I have built up a good support group.

    • ArtMouse

      653d

      I was diagnosed when I was 16, and I'm 25 now. It took a bit of time to find the right medication for me, but now it's been at least 2 years since I had a flare, maybe 3. Have hope, long-term remission is possible.

    • Mister_Holmes

      653d

      I’m sorry to hear that. At the beginning, I struggled a lot esp when it comes to hosting a guest at your home or travel to long distance places, not to mention the constant feeling of tiredness due to frequent trips to restroom. Then I started to log everything such as what triggers the most my symptoms or how many times I use the restroom in a day which led me to find out that “gluten” and “stress” are the most harmful things for my body. Somehow gluten affects my immune system and triggers my symptoms which makes me extremely sensitive to gluten, so I had to cut gluten from my entire diet. Same as stress; we don’t have the luxury of being stressed anymore unless you want your symptoms get worse and ruing your daily life. Lastly and may be one of the most important things I can add to the list is exercising every day. You cannot believe how much walking, hiking or running help me feel much better. It reduces my trips to restroom tremendously and prevents bloating. Please listen to your body first before taking any advice from anyone. No one knows what makes you feel better other than yourself. I wish you best of luck.

      • Talia0985

        653d

        @Mister_Holmes thank you!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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