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hunorandatumor

833d

Hi! What kind of tumors (if any) do you guys have? I have a rare spinal cord tumor, a pilocytic astrocytoma (rare brain tumor that occurs in children, but it’s in my spinal cord and I’m 21). I’m just trying to find some more medical unicorns ☺️☺️

Top reply
    • greentea

      546d

      I have a grade 2 meningioma, it was huge when diagnosed 6.5 cm. Generally they occur in older, post-menopausal women but I was 24 when I was diagnosed. It came back after I had surgery so I had radiation this summer

    • greentea

      546d

      I have a grade 2 meningioma, it was huge when diagnosed 6.5 cm. Generally they occur in older, post-menopausal women but I was 24 when I was diagnosed. It came back after I had surgery so I had radiation this summer

    • Muffins

      590d

      I have a Meningioma in my left parietal lobe… they’re observing it for now

    • Mommy_bear

      614d

      I have a small grape size cervical hemangioblastoma at C3/4 causing mild stenosis so neuro surgery recommends leaving it alone for now

      • Trumpet_Man

        590d

        @Mommy_bear if it grows get more aggressive with your treatment. If no change in size the I would leave it be.

    • xtina_thepirate

      683d

      I am like the 11th person in the world diagnosed with primary pituitary ependymoma. Ependymoma is typically found as a brain tumor (versus spinal cord) only in very young children. I was diagnosed at age 38 and am now 40 and scheduled for second brain surgery Aug 4th to resect the tumor. I have had a tough time getting a medical treatment plan due to no medical consensus on my tumor, as only ten cases have ever been treated in the world.

      • Trumpet_Man

        590d

        @xtina_thepirate have to read up on that one. I pray for successful surgery.

        • xtina_thepirate

          590d

          @Trumpet_Man surgery went great and they got a total resection of the tumor. This means I won't need any further treatment unless the tumors reoccurs.

    • Nik1970

      778d

      I have a lipoma on my spinal cord, Causing problems. Do you have issues?

    • Sillypeach

      828d

      I had a penial gland tumor until it committed apoptosis and I had to get an emergency craniotomy. I’m 20

      • Trumpet_Man

        590d

        @Sillypeach How are you now? Better I hope. What kind of symptoms did you have before the apoptosis

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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