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Sunshine2222

729d

What type of treatment is offered for this condition?

Top reply
    • Melady

      723d

      I had the nerve block. Unfortunately my HMO ( rhymes with visor) doesn't have a specialist who can perform nerve block with fluoroscopy or radiology to be more precise in targeting Pudendal nerve. So the Urogynocologist gave me a vaginal injection on the left side of my vagina of lidocaine. It temporarily relieved pain on left side. Wore off in four hours. But that confirmed diagnosis. I'm scheduled with another Urogynocologist and physiatrist in a few weeks to discuss treatment options. Pain doctor increased my Lyrica. So far this has given me the most relief. I'm also going to try biofeedback and self hypnosis. It's an agonizing pain, I'm so sorry you're going through this as well. Unfortunately for us, it's really quite rare so there's not tons of research or treatments. I just keep telling myself this won't be forever. It's challenging after nearly 4 months. Best advice is to advocate for yourself. It's 2022 there's no need for people to live with this much acute pain. I also take a lot of warm baths. Spoil yourself. We deserve it.💜💜💜💜

    • Melady

      723d

      I had the nerve block. Unfortunately my HMO ( rhymes with visor) doesn't have a specialist who can perform nerve block with fluoroscopy or radiology to be more precise in targeting Pudendal nerve. So the Urogynocologist gave me a vaginal injection on the left side of my vagina of lidocaine. It temporarily relieved pain on left side. Wore off in four hours. But that confirmed diagnosis. I'm scheduled with another Urogynocologist and physiatrist in a few weeks to discuss treatment options. Pain doctor increased my Lyrica. So far this has given me the most relief. I'm also going to try biofeedback and self hypnosis. It's an agonizing pain, I'm so sorry you're going through this as well. Unfortunately for us, it's really quite rare so there's not tons of research or treatments. I just keep telling myself this won't be forever. It's challenging after nearly 4 months. Best advice is to advocate for yourself. It's 2022 there's no need for people to live with this much acute pain. I also take a lot of warm baths. Spoil yourself. We deserve it.💜💜💜💜

    • Melady

      727d

      I finally demanded a nerve block. Have to go to Urogynocologist as they specialize in pelvic floor. It was so obvious to me (self diagnosed too. Met every single symptom) At first they said my myofascial (muscle) cause but Botox and lidocaine injections into vagina didn't help so then she said idiopathic (unknown origin) nerve pain. Thus why I demanded the nerve block. They didn't suspect pudendal nerve because MRI and CT scans normal. I did test positive for Covid (have all vaccines) and was asymptomatic. But I truly believe this is what started it. If they say you don't have Pudendal ask them to explain why you don't. That's what I did. I describe it as pinecone or cactus in my rectum and vagina. It's a truly unique pain isn't it. Sending you healing thoughts.

      • Sunshine2222

        724d

        @Melady Thank you for the info, I will definitely reach out to a Urogynocologist. This is the most uncomfortable thing I’ve ever experienced as you know as well. I hope all is good with you now.

        • Sunshine2222

          724d

          @Sunshine2222 Sorry I just read that you are scheduled for the nerve block. Let me know how that turns out

    • Melady

      728d

      I've tried Nortriptyline and Lyrica. Typically Gabapentin is prescribed but I'm allergic. I'm scheduled for a nerve block. Urogynocologist said this is both a treatment and a diagnostic. I'm crossing my fingers.

      • Sunshine2222

        728d

        @Melady Good Luck! I’ve never been formally diagnosed, I’ve had MRI’s been to the Gynecologist, and 2 neurologist with no answer. I’ve self diagnosed myself basically but my doctor prescribed Gabapentin but I no longer need that as now I’m just totally numb. That was 1.5 years ago so I just don’t know what the next step is. Thanks for your input.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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