Wanting My Thyroid Removed: Is It Worth It?

I just want my thyroid gone. Im 24 and got diagnosed with Hashimotos in 2019 I have been having bouts of episodes where it feels like something is just… off. I’m more fatigued, I’ll notice my gland on my neck will swell. I have had an ultrasound and have seen my PCP who said we will just “watch it”. The way I see it, no matter what I’m going to be on medications for it for the rest of my life so why even keep it in any longer? Ugh.

Your answer

eline

1y ago

my mom got hers removed and she still has to take meds for it… i understand where you’re coming from ofc but thyroid problems are smth we have to deal with for life regardless if we have ours or not

MamaFrog

1y ago

I hate hearing all your labs look normal. Obviously not DA, or I would feel better. How about let's not throw another pill at it and let's look at nutrition. K?

BexC

1y ago

I wish I could tell you to expect it to get better. I was about your age when I was diagnosed. The most I have ever gotten from a doctor or specialist is, "Your labs are normal" , or "Your labs are off a little we'll adjust your dosage". Finding a doctor who is sympathetic to the fact that even though you are on medication you symptoms still are very much there, seems impossible. Like I said I was about your age when I was diagnosed and I am getting ready to turn 45. So for the last 20 years I haven't found anyone willing to help make the pain, tiredness, brain fog, night sweats, exhaustion, etc...etc...go away, or even hear me when I say that I still experience this every day.

WearyBun

1y ago

Wow. I've been struggling for the last 5 years with all of those symptoms and it's sad to hear that it doesn't get much better than this.

ScarlettRiley

1y ago

That’s how I feel, too. I’m so tired of fighting with mine.

nerdybynature

1y ago

I had a left thyroid lobectomy in 2017 or 18. The surgeon cut my laryngeal nerve and paralyzed my vocal chord. For 2 years I could barely speak above a whisper and my breathing was greatly affected. It changed my life completely. I have since had another surgery to insert an implant into my vocal fold so I can speak again and breathe normally. Please do your own research and know the risk involved if you do decide to have a thyroidectomy.

Aaaahhhhhhh

1y ago

I’d be worried getting it removed would just cause another autoimmune beef 😥 I’ve been having the same flare up where my tsh is 1 for the last couple of months too

WearyBun

1y ago

And they say if your TSH is between 1-2 you should be absolutely fine :(

Falafel

1y ago

I never considered that. Would we lose Hashimoto’s if we didn’t have a thyroid? Because damn.

kittycrime

1y ago

Unfortunately, no, we wouldn't lose Hashimoto's, we would just have no thyroid, which causes the same dysregulation issues regarding thyroid hormones and requires medication. Otherwise it can be life-threatening. Doctors want to focus on facilitating equilibrium in the thyroid system, not necessarily stopping the thyroid function

kittycrime

1y ago

Same, honestly. Mine has been swollen for the past week or so, and even though all my levels are "normal" I still get flares? And yeah, you'd have to take medication for it either way, so I get just wanting to get rid of it. I wish I could tbh

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