Stories
Privacy
Download
See Alike in...
Alike App
Browser
855d
Hi all! Has anyone else had their thyroid removed, and is working through chronic fatigue despite having fairly regular test levels for a long period of time?
1
3
Share
Graves' Disease
advertisement
854d
@birdbrain I've been worried about TED as well but I try to keep myself from thinking about it since I know I can't do anything else to control it at this point. I'm glad that your body has adapted well after the thyroidectomy. I took tirosint for a while too and I think that was more helpful than normal levothyroxine. I'm always available to talk about whatever. Let me know if you want to connect outside the app!
@spoonie93 that sounds like a really intense medical journey, I am really glad you are still here with us. I am sure it has been a strange human experience for you. Being tired every day is hard & I have a lot of empathy just from what you’ve shared. for you it must be even harder to be positive during the more aggressive waves of fatigue, with the additional medical routines and little helping with fatigue management. I think lots of chronic illness people have to find beauty in their heads because of being drained. but I know it can feel like a lesser compensation. but for me it is also sometimes beautiful and being cerebral and mentally pictorial is profoundly rich and calming for me. I’m sure you’ve heard it all and still just wanted to connect and plug in with my experience & say hi/introduce. What you shared is helping me to re-entertain ideas about careful med taking routines and eating times with the absorption of my tirosint. I’m grateful my body has adapted mostly well over time, but often have random intrusive anxiety about developing TED or a unique situation with administrating meds. Please be well and thank you for sharing. ♥️
Hi! I had a total thyroidectomy in 2013 due to thyrotoxicosis. My thyroid hormone levels were relatively normal for the first 1.5 years after my thyroid was removed but then my TSH began to skyrocket and my T4 was in the ground. I was taking my meds everyday and nothing was working and my body just wasn't absorbing anything. I have digestive issues that really impact absorption of oral meds. So I had to start taking levothyroxine via intramuscular injections and then finally intravenously. I still take the meds IV everyday but I still deal with severe fatigue. My doctor started me on a high dose of oral T3 and I feel like that has helped a little bit with the fatigue but I still feel tired all the time.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions