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birdbrain

842d

Hi all! Has anyone else had their thyroid removed, and is working through chronic fatigue despite having fairly regular test levels for a long period of time?

Top reply
    • spoonie93

      842d

      @birdbrain I've been worried about TED as well but I try to keep myself from thinking about it since I know I can't do anything else to control it at this point. I'm glad that your body has adapted well after the thyroidectomy. I took tirosint for a while too and I think that was more helpful than normal levothyroxine. I'm always available to talk about whatever. Let me know if you want to connect outside the app!

    • spoonie93

      842d

      @birdbrain I've been worried about TED as well but I try to keep myself from thinking about it since I know I can't do anything else to control it at this point. I'm glad that your body has adapted well after the thyroidectomy. I took tirosint for a while too and I think that was more helpful than normal levothyroxine. I'm always available to talk about whatever. Let me know if you want to connect outside the app!

    • birdbrain

      842d

      @spoonie93 that sounds like a really intense medical journey, I am really glad you are still here with us. I am sure it has been a strange human experience for you. Being tired every day is hard & I have a lot of empathy just from what you’ve shared. for you it must be even harder to be positive during the more aggressive waves of fatigue, with the additional medical routines and little helping with fatigue management. I think lots of chronic illness people have to find beauty in their heads because of being drained. but I know it can feel like a lesser compensation. but for me it is also sometimes beautiful and being cerebral and mentally pictorial is profoundly rich and calming for me. I’m sure you’ve heard it all and still just wanted to connect and plug in with my experience & say hi/introduce. What you shared is helping me to re-entertain ideas about careful med taking routines and eating times with the absorption of my tirosint. I’m grateful my body has adapted mostly well over time, but often have random intrusive anxiety about developing TED or a unique situation with administrating meds. Please be well and thank you for sharing. ♥️

    • spoonie93

      842d

      Hi! I had a total thyroidectomy in 2013 due to thyrotoxicosis. My thyroid hormone levels were relatively normal for the first 1.5 years after my thyroid was removed but then my TSH began to skyrocket and my T4 was in the ground. I was taking my meds everyday and nothing was working and my body just wasn't absorbing anything. I have digestive issues that really impact absorption of oral meds. So I had to start taking levothyroxine via intramuscular injections and then finally intravenously. I still take the meds IV everyday but I still deal with severe fatigue. My doctor started me on a high dose of oral T3 and I feel like that has helped a little bit with the fatigue but I still feel tired all the time.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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