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Youre_Not_Alone333

805d

Does anyone else have serious problems with thermoregulation? I’m constantly having hot/cold sweats sometimes I get panicky after it starts happening, sweating and red but freezing and shivering then just so hot I need to shed everything or then so cold I can hardly move and near convulsion shivering. Was tested for menopause at age 30 (9 years ago) and again just a few months ago and they say is not that. I’ve Considered my meds of course but it also coincides with my heart sometimes my beats per minute go down to 38 while I have these episodes. Anyone else

Top reply
    • Irish

      803d

      I'm just putting this out there, how I'm feeling today. It's a beautiful sunny day and I should be out walking my dog or doing something. But I just can't get out of my bed. I don't want to be bothered by anyone either. I'm still doing ketamine for my depression and trying to figure out what will work for me treatment-wise. Why do I feel like I would rather die then stay around in this world? I have my kids a beautiful little granddaughter and my mom and dogs. But I can not shake that feeling that I would rather be dead then be around. This isn't a good day for me. But is there anyone out there that feels this way? Or am I a selfish freak?

    • Knightstarr

      803d

      @Irish I feel like that all the time. I just have to keep reminding myself that it is just the pain and not me. You are not selfish for not wanting to suffer. Having kids is probably the only reason that I am still alive right now. Your kids need you no matter what. Tell yourself that and just make it through today. Tomorrow might be better, if not maybe the next day. You never know what the new day will bring 🤗🤗

    • Irish

      803d

      I'm just putting this out there, how I'm feeling today. It's a beautiful sunny day and I should be out walking my dog or doing something. But I just can't get out of my bed. I don't want to be bothered by anyone either. I'm still doing ketamine for my depression and trying to figure out what will work for me treatment-wise. Why do I feel like I would rather die then stay around in this world? I have my kids a beautiful little granddaughter and my mom and dogs. But I can not shake that feeling that I would rather be dead then be around. This isn't a good day for me. But is there anyone out there that feels this way? Or am I a selfish freak?

    • SAMHAIN

      803d

      So glad to hear you have a clinician who LISTENS and takes into consideration your concerns 💕💕💕

    • Youre_Not_Alone333

      804d

      (*SURGERY recovery…* I wish I could edit my comments! )

    • Youre_Not_Alone333

      804d

      My home nurse just left and we were reading your responses while she did her thing and was on board with all of your thoughts and suggestions- I will definitely be going back to my cardiologist and an endocrinologist once I’m through the worst of this surely recovery 🙏🤞🏻🙌🏻📿

    • SAMHAIN

      804d

      @wilder yeah been noticing vyvanse may be exacerbating my POTS buuuuuut it's SO WORTH not having the myriad symptoms of ADHD that are debilitating to my life, plus Vyvanse cured my treatment-resistant depression and it comes right back when im not on it soooooo 💁

    • SAMHAIN

      804d

      #dysautonomia #hPOTS

    • happiness4begginners

      804d

      Yes I do too I have for a long time at first they diagnosed me with orthostatic tachycardia syndrome a dysautonomia but then most of my symptoms went away after they fixed my lungs I had aneurysm. But I still have temperature fluctuations that are wild and don't match what's going on in the room around me. I've also been diagnosed with ra and I guess I can come with fevers periodically I experienced low-grade fevers as well and none of it has been diagnosed for sure I really like feel like suggestion

    • feellicks

      804d

      please see a cardiologist and/or an endocrinologist

    • Wilder

      804d

      Oh, yes, me!! It stinks. For me, adderall aggravates my severe heat intolerance and all sorts of weird temp issues. I still take it anyways, but I’ve definitely personally identified that med as being a major contributor.

    • Youre_Not_Alone333

      804d

      Thank you so much fellow warriors 💪🏻💜 All bloodwork (except always low vitamin D) and thyroid are all checked within last 3 months and they say all is fine. Most recently my pain management recommended maybe seeing an endocrinologist which I will do once I’m out of recovery (will be 4 weeks post-op on Monday from breast implant removal and c-section scarring and adhesions removal)… I was also thinking it may be connected to the Breast Implant Illness (BII) so maybe it will start clearing up over time now the implants are out🤷🏻‍♀️

    • Scarlettrose

      805d

      Have you had your thyroid function checked? Also, blood sugar changes gives me hot flashes. So you might have your sugar checked also. That is also a symptom of adrenal insufficiency.

    • Pollie

      805d

      For the past week and a half I’ve dealt with the most horrendous heat intolerance which lately seems to come from the inferno burning from the inside of my body outwards but now I lay here and my feet feel like icicles that may quick shatter into 1 million pieces if anything touches em... it’s amazing how drastic the extremes get with his hot and cold dysregulation of temperature thing go but I’m glad to see I’m not alone even though I wish no one else had to go through this

    • Knightstarr

      805d

      Yes I have that too. My best suggestion is to layer your clothing so that you can adjust it to your temp. Also a little fan on a necklace when you get extra hot

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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