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Keweenawqueen's Post

Keweenawqueen

1y ago

Struggling with Temperature Regulation

Does anyone else struggle with temperature regulation? I feel in the summer I get very hot and sweaty quickly, and then as soon as it’s even a little chilly I cannot get warm. I’m always cold. And then the cold makes me hurt more 😫

Your answer

pachacha

1y ago

This happens to me all the time

Tiddles

1y ago

I do too. It is so frustrating

Pescalito

1y ago

People told me for the longest time that my hot flashes and sweating were peri-menopause. Nope. And nope. I just can't regulate. And it doesn't matter the weather....sweats or shivers come on randomly at any time.

DrakellaEuphrates

1y ago

Im learning sooo much from you all. I thought it was just me...😥

Leviross

1y ago

One of the worst parts of fibro is the temperature sensitivity. If it's over 85 or under 50 I cannot leave the house.

anymachine

1y ago

I seem to always be an extreme- in the heat I can be shivering or boiling, and when it's cold I'm either outside in summer clothes or inside unable to get warm at all

royalty

1y ago

Yup 100%. I've got fibro, autism, and POTS so all of that jumbled together makes temperature (especially heat) practically unbearable lol

Red914

1y ago

Absolutely. I get too hot or too cold all of the time. I always carry a fan and fingerless gloves in my purse if I get to hot or cold. I think it has to do with fibromyalgia connection to central sensitization syndrome.

Rayningtigress

1y ago

Yes but my problem is im freezing cold when i wake up and burning hot when im sleeping. 😫

ghostcake

1y ago

Just FYI some medications can also cause issues with temp regulation (especially summer) but I think this is common in fibromyalgia

Trudie_tootie

1y ago

Yuuup. Pass out a lot in the summer from AC to heat, and am always turning the cooling down in my house. Also in winter I can't get warm without external sources, heating pad plus a warm shower b4 bed or I can't sleep bc of my feet.

tigster

1y ago

I do I'm also so sensitive to temperature now it's horrid the cold is setting my pain off more 😔

sapphic

1y ago

omg this is a FM thing??? I had no idea bc yes all the time (currently typing with shorts and a tank top on.. it’s snowing)

MedicalMystery89

1y ago

Yes! I also have that when going in and out of different temps (i.e. into air-conditioning from the summer heat or into heated places from the cold winter weather)

Keweenawqueen

1y ago

me too! It makes me sick to my stomach and dizzy going in and out of different temperatures! My bedroom is a different temperature than the rest of the house and anytime i leave my room I feel like I cant function because I’m so uncomfortably cold

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