1000% the guilt and shame on top of the chronic pain is what is really the straw that breaks the camels back… I had to quit my last job because my TBI/migraines were impacting my ability to work and be reliable

I absolutely can relate. I tried to force myself to go to work after a TBI that caused PCS and I got hit in the head a couple more times which set my recovery back. So I had to take an indefinite leave from work until I can be a healthy reliable staff member. It makes me feel guilty and useless..

Currently missing the gender reveal party for my first niece/nephew because my PCS symptoms don’t allow me to travel well. Devastated is an understatement.

I've been out of work since March due to PCS after a slip and fall. In high school I missed majority of my days because of Syringomyelia. One of the hard parts is that most times the issue isn't visible, so people think you're faking 😕 I'm reminding myself first, but don't beat yourself up over this. At times I feel like I'm incapable or just lazy, but how can you do anything when you're either in pain or just can't focus your mind on a single task? I hope you are able to find relief.

Yes, I feel like this all the time, second guessing myself, thinking am I actually in pain, do I need to take medicine, all these thoughts telling me I'm wrong and horrible and just making everyone around me miserable because of my choices and pain, being called high maintenance due to all the doctors and medications and tests, I'm just so tired of it and never knowing what to do