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Zozo_ollie

753d

Do you ever feel so guilty that you didn't make it to school or work because of TBI or PCS symptoms? I have been missing so much school that I feel like I let so many people down.

Top reply
    • LunaNova

      448d

      Yes, I feel like this all the time, second guessing myself, thinking am I actually in pain, do I need to take medicine, all these thoughts telling me I'm wrong and horrible and just making everyone around me miserable because of my choices and pain, being called high maintenance due to all the doctors and medications and tests, I'm just so tired of it and never knowing what to do

    • LunaNova

      448d

      Yes, I feel like this all the time, second guessing myself, thinking am I actually in pain, do I need to take medicine, all these thoughts telling me I'm wrong and horrible and just making everyone around me miserable because of my choices and pain, being called high maintenance due to all the doctors and medications and tests, I'm just so tired of it and never knowing what to do

    • Jigglebean

      746d

      I've been out of work since March due to PCS after a slip and fall. In high school I missed majority of my days because of Syringomyelia. One of the hard parts is that most times the issue isn't visible, so people think you're faking 😕 I'm reminding myself first, but don't beat yourself up over this. At times I feel like I'm incapable or just lazy, but how can you do anything when you're either in pain or just can't focus your mind on a single task? I hope you are able to find relief.

      • alex..evans

        508d

        @Jigglebean i totally agree with people thinking ur faking, all my friends say “ u don’t have a concussion for 4 years” when i’ve clearly said it’s not and it’s pcs and you can but they still don’t believe me. also no one knows how hard it is being in pain literally everyday. it’s so draining and i’ve tried loads of meds and treatment but nothing works 😥 i hope it get better for u x

    • Jellibean_Lover

      752d

      Currently missing the gender reveal party for my first niece/nephew because my PCS symptoms don’t allow me to travel well. Devastated is an understatement.

      • Y0g1

        746d

        @Jellibean_Lover recently had to miss my best friends wedding for the same reasons. I cannot explain how hard I cried and how those tears didn’t do justice to how I felt. I’m so sorry that this thing has controlled you and what you can or can’t do. It’s unfair and it freaking sucks. I’m so sorry. Please remember you are allowed to grieve the life you are not getting to live right now ♥️

    • Bugga

      753d

      I absolutely can relate. I tried to force myself to go to work after a TBI that caused PCS and I got hit in the head a couple more times which set my recovery back. So I had to take an indefinite leave from work until I can be a healthy reliable staff member. It makes me feel guilty and useless..

    • Y0g1

      753d

      1000% the guilt and shame on top of the chronic pain is what is really the straw that breaks the camels back… I had to quit my last job because my TBI/migraines were impacting my ability to work and be reliable

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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