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AmieB

844d

I’m switching from Gilenya to Ocrevus… Thoughts?

Top reply
    • Shushak

      254d

      I’m on Ocrevus and happy with it (vs painful weekly Copaxone injections) . MRIs scans appear clear so far so I remain hopeful it will continue to keep progression at bay. No Side effects except some minor itchiness during infusion.

    • Shushak

      254d

      I’m on Ocrevus and happy with it (vs painful weekly Copaxone injections) . MRIs scans appear clear so far so I remain hopeful it will continue to keep progression at bay. No Side effects except some minor itchiness during infusion.

    • Red16

      834d

      I’ve been on ocrevus since diagnosis and it has worked really well for me so far. It’s nice to only have to go in for meds 2x/yr. When I first started it was a little rough, felt way more fatigued than usual and got some weird sensory symptoms (I still experience normal ms-related fatigue but it’s not nearly as severe). These symptoms passed eventually when my body adjusted though and it’s been pretty uneventful ever since (which is a massive blessing!)

    • Chan

      834d

      👍I have felt that way with the Ocrevus. Especially when I first started it.

    • Kelgon

      839d

      I just had my first full dose of Ocrevus in November. So far I have not had any progression, but I do seem to feel kind of “sick”more often than not lately. I get mild fevers/chills/aches from time to time and also have cold symptoms more often than I would like. Not sure if it’s because the Ocrevus is suppressing my immune system or what. But I think I’d rather feel blah than have my MS progress. For reference, I started on Copaxone, than after about a year I switched to Tecfidera. Was on that for many years and then switched to Ocrevus in 2020

    • barney

      842d

      The MS is still progressing, Ocrevus is keeping it sequester is my hope

    • Chan

      842d

      I am also on Ocrevus. I love it. Feel much better since I have been on it.

    • barney

      844d

      Twice a year

    • barney

      844d

      Ocrevus is 6 hours of infusion time, I haven't had any issues.

    • barney

      844d

      All I've tried is Ocrevus. After 5 years of thinking I had a knee problem, was diagnosed with Primary Progressive Multiple Sclerosis 4 years ago.

    • Orangesunrise

      844d

      So I’m on tecfidera and debated switching as well — I’m honestly not sure because I feel like it’s a lifestyle difference to go from pills to infusions. Dm me we can chat!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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