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Nicole365

905d

Hi everyone, my name is Nicole. And I would like to get to know people with same conditions I do just because sometimes I tend to feel down, and a little bit alone.

Top reply
    • Cai

      904d

      Have you tried regular infusions? I know those help a lot of people with POTs!

    • Cai

      904d

      Have you tried regular infusions? I know those help a lot of people with POTs!

    • Matthew

      905d

      Hey

    • Nicole365

      905d

      Also forgot to mention that I take salt capsels as well.

    • Nicole365

      905d

      Yes, I was taking propranalol but it turns out that I've started to develop some rash, so my doctor told me to stop taking it for now. I use to take midodrin and I was feeling so sick with my stomach. It was horrifying. I allso take pepsid and opramazol for the terible acid reflux. I do where spanks but it started to hurt my stomach, I have a hernia. I have a hiadle hernia.

    • Matthew

      905d

    • QueenofHearts

      905d

      The biggest thing is don’t wear yourself out too early in the day.

    • QueenofHearts

      905d

      The POTS is terrible for sure. People say the compression socks work but they don’t work for me. I take Midodrine and fludrocortisone for my heart rate. It helps me but everyone is a bit different.

    • Nicole365

      905d

      ❤️ Thank you so much, I struggle with everything altogether pretty much, but the pots, really beats me up pretty roughly

    • QueenofHearts

      905d

      I will be the first to say you are not alone. We are here for you. What do you struggle with the most?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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