Sudden weight gain and loss with COLON issues, POTS MCAS or EDS

If your providers are ignoring your concerns, please don’t give up. If you no longer feel comfortable contacting and pushing them for further exploration, please find a new provider. So so so many providers don’t understand these conditions, and we as the patient’s pay the price for their lack of knowledge. It doesn’t make them a bad provider, just human, and incapable of knowing and understanding every condition. It does however, make them a bad provider for you….. and your only responsibility in this is to advocate for your own health!!! If you don’t feel comfortable saying something face to face, you can contact your providers on whatever electronic portal they use, and explain that you really feel like something else is going on. Also…. Document and share with your doctors everything you can. Keep a symptom journal- what do you experience (pain, bloating, so on), when does it happen, thoughts about potential triggers, and what does or does not help to relieve the symptoms!? Document with pictures or diameter measurements when you’re experiencing fluctuations of size and weight gain. Also document your daily weight. Measure for several days in a row around your limbs and belly if these are the areas gaining size. Make sure to measure at the same spot every time. So make a line or star or something so you can show actual consistency in your data. I hope you get answers and can find the right help!!!