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bananaz

701d

Has anyone been diagnosed with a sucrase deficiency / sucrose intolerance? Is there really any way to treat this? My insurances won’t cover the one medication out there (Sucraid) and it’s otherwise super expensive. Not sure if this is the root cause of my IBS but curious is anyone else has discovered this about themselves?

Top reply
    • berryblue8921

      623d

      @Pulp it's so hard to get the meds for ssucrose I had it once and it only helps a little, after my parents stopped ordering it (because of financial issues) a few years later I tried to get it back again but it's hard to find and get from a doctor as far as I know, they have to mail it to you in a special box and it has to be kept cold, I think it's because how rare it is not many people make it and give it out

    • Pulp

      641d

      It feels so weird to me that there’s only one medication out there! Maybe I’m mistrusting but the fact that my GI doctor had me breath into a tube, mail it to the company that makes the meds, and then get told by that same company that I need the meds? I don’t like it at all.

      • berryblue8921

        623d

        @Pulp it's so hard to get the meds for ssucrose I had it once and it only helps a little, after my parents stopped ordering it (because of financial issues) a few years later I tried to get it back again but it's hard to find and get from a doctor as far as I know, they have to mail it to you in a special box and it has to be kept cold, I think it's because how rare it is not many people make it and give it out

      • Maverique

        641d

        @Pulp try eliminating sucrose and starch for a couple months and see if your symptoms improve. If they do, get the enzymes (that's what the "medication" is) and be able to eat a larger variety again.

    • Maverique

      641d

      How did you get diagnosed? I got misdiagnosed with fructose malabsorption, ruined my life for nearly 2 years trying to avoid fructose -which made me eat other sugars. Switched diets a couple more times (back to general, and then avoiding sucrose and starch as much as possible) and then presented this to the doctor the second time I had a colonoscopy. Succraid/your doctor can fight your insurance's decision a bit, and succraid has a program (mine was down at $5/mo.) But they did change companies recently and I had a lapse in coverage so I haven't had the enzymes yet since the new company. Get the prescription and then try to get it to an affordable cost.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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