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D1ddy

692d

I take hydrocortisone. All it does is make your hands and feet swollen along with your face. Are there any way we can substitute all the medicine I take with something natural to the body?

Top reply
    • Captofthevessel

      685d

      @Kellyelyce when you have a Craniopharyngioma, your function of your pituitary gland basically dies & you have to take replacement therapy. I had a craniotomy in 2011 to remove mine & still haven’t found a non hydrocortisone related therapy. I just don’t swell like crazy like other people do, resulting in hypothalamic obesity I believe. I’m 28 & 90 pounds. 🤷🏽‍♀️

    • Kellyelyce

      690d

      What is the reason to be on steroids?

      • Captofthevessel

        685d

        @Kellyelyce when you have a Craniopharyngioma, your function of your pituitary gland basically dies & you have to take replacement therapy. I had a craniotomy in 2011 to remove mine & still haven’t found a non hydrocortisone related therapy. I just don’t swell like crazy like other people do, resulting in hypothalamic obesity I believe. I’m 28 & 90 pounds. 🤷🏽‍♀️

    • D1ddy

      692d

      No I don’t have Addison’s disease, I had a brain tumor called Craniopharyngioma when I was 11 in 2013. I feel like when I don’t take hydrocortisone, I don’t feel hungry and I eat less which makes me feel good. I’m actually able to control my hunger now I wanna lose weight and stop taking meds and start taking healthy vitamins

      • Captofthevessel

        685d

        @D1ddy you had a Craniopharyngioma too?! Me too.

    • D1ddy

      692d

      I’m on 5mg. I take 2 in the morning, 1 1/2 in the afternoon, and 1 at night. See the doctors say I need to take it to live but I believe I can find something more natural. Doctors don’t heal, they just keep you stabilized

    • Kellyelyce

      692d

      If you have Addison’s disease/adrenal insufficiency you have to take hydrocortisone to live. If you are having swelling you should tell your endocrinologist. What dose are you on?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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