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174d

I feel like my symptoms all got worse after I was diagnosed. I know it's not all in my head, I'm sick of feeling like this. So why is everything getting worse? Isn't it supposed to get better after a diagnosis?

    • Mmmmkayla

      172d

      It’s not the receiving of a diagnosis that makes things better, but the opportunity for tailored and proper treatment to occur. Even then it can be a long drawn out process to find what works for you as an individual.

    • InconclusiveResults

      172d

      I felt like that too, after my diagnosis. I think EDS is one of those things where you've been gaslighted for so long that once you get a real diagnosis that verifies your pain and fatigue, it allows you to accept it and feel the full weight of it. 💞

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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"It's going to get worse before getting better with treatment." Also, "treatments are hard, you have to change them a lot, but the best thing to do for yourself is be patient and know that you don't have to pretend that you're not in pain, adapt your lifestyle the best you can."

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