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dan3

687d

I have been having issues that line up with an autoimmune disorder for months. I have had multiple specialists tell me to get tested for autoimmune disorders. My doctor just did blood work last week for a few that we think I might have. He did warn me that because I’ve only had symptoms for a couple months and because I am only 17, that even if I do have one of them that we tested for it might not show up. Just got all my test results back and everything is “normal”. So now we get to do further testing, if that’s all normal then we just play the waiting game and hope that when we test next time I get some answers. Even though I knew this was a possibility, I am devastated. You’d think that everything coming up normal would be good but, this just means I have to deal with even more testing, more draining doctors appointments, more pain, and feeling like shit 24/7, more people not taking me seriously because it’s undiagnosed, etc etc. I know getting diagnosed is a long process, but I was hoping that maybe something would finally go my way and that a diagnosis would give me some form of closure or reassurance. So now we’re back to square one. Now I’m stuck wondering how many more times I have to miss school, work, important events, and more, just because I am so mentally and physically drained from whatever is going on. Did/Does anyone else have this issue? How did you cope with it? Did you also have moments where you thought you were just overreacting and maybe nothing was actually wrong?

    • KateTheGreat

      671d

      I am 51 and have dealt with the same thing . I developed autoimmune disease when I was 34. So it’s been 17 years . And despite being older I have dealt with people not believing me , doctors dragging their heels , useless testing , inconclusive results and misdiagnosis. Not to sound too much like a mom , but keep your chin up . Try to not let it define you . It’s hard when you feel like shit all the time . I’ve missed so many events . I worked in a really demanding industry for 25 years and eventually had to downgrade to a less challenging job . As far as the doctors are concerned , be your own advocate. Ask lots of questions. It’s super frustrating and I’m so sorry that you’re going through this at such a young age . I would be devastated too . It sucks . It really sucks . I’m always happy to chat if you want advice or whatever .

    • mamyokum

      687d

      I tend to believe if someone can't physically see your disability,they don't believe you...even doctors! 🙏

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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