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TheUltimateGinge

1y ago

Struggling with Sleep Issues and Seeking a Diagnosis

So it won't let me select the narcolepsy without cataplexy, but here it goes. I've had a lot of sleeping issues for years. They thought I had sleep apnea a few years ago, and now it's looking like I don't. I've had sleep paralysis 2 times in one month, leading my psychiatrist to think it's not just my medicine, making me tired. He thinks I could have narcolepsy. I'm due to see a sleep doctor in a few weeks now (been waiting over a month or two so far). From the brief conversation I accidentally sent to her, she thinks it's me just not using my cpap right. Which I don't agree with, I feel like I'm in compliance. I'm not sure how to get her to take me seriously and how to get her to think it might be narcolepsy (minus cataplexy). I have a lot of the symptoms, and even my psychiatrist (who willingly admitted he's not a sleep expert) and therapist think this could be it after ruling things out. I hate that doctors never seem to take me seriously! I just want to know what's going on, and hopefully be able to treat it. I don't think that's too much to ask. This NP just seems very flippant about my problem

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faerywyrm

1y ago

Being off anxiety meds for a couple of weeks would be scary for me, too. Have you tried meditation or breathing exercises to help with the anxiety? Some people find some relief that way.
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TheUltimateGinge

1y ago

I'm just worried she won't order one for me :/ or that I'll be amped up for some reason and won't get accurate results. Plus my psychiatrist was saying for narcolepsy tests, I'd most likely have to be off my anxiety medications for a couple weeks which worries me
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Samahe

1y ago

Me and my daughter have it, it runs in family
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Samahe

1y ago

Look up low orexin, and symptoms
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Samahe

1y ago

You need daytime sleep study
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faerywyrm

1y ago

I am so sorry to hear of your troubles. I don't have narcolepsy with my cataplexy, but I have had sleep paralysis several times. I don't know what a cpap would have to with sleep paralysis. I breathe just fine when I get it. I hope the flippancy goes away very soon
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TheUltimateGinge

1y ago

thank you
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TheUltimateGinge

1y ago

they thought I had sleep apnea at first, but other doctors think I don't now. So some think it could be narcolepsy, but they're not sure yet. Not sure if this np will even look into it further

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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