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TheUltimateGinge

442d

So it won't let me select the narcolepsy without cataplexy, but here it goes. I've had a lot of sleeping issues for years. They thought I had sleep apnea a few years ago, and now it's looking like I don't. I've had sleep paralysis 2 times in one month, leading my psychiatrist to think it's not just my medicine, making me tired. He thinks I could have narcolepsy. I'm due to see a sleep doctor in a few weeks now (been waiting over a month or two so far). From the brief conversation I accidentally sent to her, she thinks it's me just not using my cpap right. Which I don't agree with, I feel like I'm in compliance. I'm not sure how to get her to take me seriously and how to get her to think it might be narcolepsy (minus cataplexy). I have a lot of the symptoms, and even my psychiatrist (who willingly admitted he's not a sleep expert) and therapist think this could be it after ruling things out. I hate that doctors never seem to take me seriously! I just want to know what's going on, and hopefully be able to treat it. I don't think that's too much to ask. This NP just seems very flippant about my problem

Top reply
    • faerywyrm

      441d

      Being off anxiety meds for a couple of weeks would be scary for me, too. Have you tried meditation or breathing exercises to help with the anxiety? Some people find some relief that way.

    • faerywyrm

      441d

      Being off anxiety meds for a couple of weeks would be scary for me, too. Have you tried meditation or breathing exercises to help with the anxiety? Some people find some relief that way.

    • TheUltimateGinge

      441d

      I'm just worried she won't order one for me :/ or that I'll be amped up for some reason and won't get accurate results. Plus my psychiatrist was saying for narcolepsy tests, I'd most likely have to be off my anxiety medications for a couple weeks which worries me

    • Samahe

      442d

      Me and my daughter have it, it runs in family

    • Samahe

      442d

      Look up low orexin, and symptoms

    • Samahe

      442d

      You need daytime sleep study

    • faerywyrm

      442d

      I am so sorry to hear of your troubles. I don't have narcolepsy with my cataplexy, but I have had sleep paralysis several times. I don't know what a cpap would have to with sleep paralysis. I breathe just fine when I get it. I hope the flippancy goes away very soon

      • TheUltimateGinge

        442d

        @faerywyrm thank you

      • TheUltimateGinge

        442d

        @faerywyrm they thought I had sleep apnea at first, but other doctors think I don't now. So some think it could be narcolepsy, but they're not sure yet. Not sure if this np will even look into it further

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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It's important to communicate your concerns and symptoms clearly with the sleep doctor during your appointment. Share your experiences with sleep paralysis, fatigue, and any other symptoms you have. Mention that your psychiatrist and therapist also suspect narcolepsy. Being open and honest about your situation will help the doctor take your concerns seriously and consider the possibility of narcolepsy.

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