I have been fighting sepsis 4x in less than 4 months. Having CIDP, my muscle weakness has been affected a lot and I am just starting to be able to sit up on my own again. But, today they transferred me from the acute rehab I’ve been in (an AMAZING place full of so many wonderful people)- to this new place and I am so overwhelmed and I just got here but I just want to be back where I know and trust everyone and they know and love me! I’m only 25 and my family situation absolutely sucks. I feel so alone right now. Trying not to just cry continuously but it’s all I can do. It took me years to regain my strength and get out of a wheelchair and build a life that I really truly loved! I will always have medical issues but this sudden and drastic decline in my health has been so incredibly hard. Add that my family has abandoned me except they’ll come and put on an act like they care but then like I asked my mom to come and take stuff with her in her car because I have a ton of stuff- too much to put in the ambulance, and she came and brought a few things down then said it was too much work for her to bring the rest. It wasn’t fair to me or the people transporting me. Her and my aunt just want to know and dictate my care and not in my best interest, but in theirs. They told me they would rather have me suffering than taking meds they don’t want me on or being on TPN. It hurts. They call me a drug addict to other people when I in no way ever take my medications not as prescribed. I don’t do anything I shouldn’t do. It hurts. And then I always go back to but I love them… but it always ends up hurting me.
Gastroparesis
Postural Orthostatic Tachycardia Syndrome (POTS)
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Anxiety (Including GAD)
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