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vel.maw

536d

The biggest struggle I have is rheumatoid arthritis because I believe it's going to wind up being the one illness that will cripple me. It scares me. Just need a word of encouragement.

Top reply
    • Lots_of_ish

      496d

      @Myshadowle this is good to know. I struggle with pain from fibromyalgia and early RA. My struggle is when do I take prednisone? How bad should the pain be to take steroids? I feel great on steroids! But I feel steroids are just a temporary bandaid.

    • TrebleNurturer

      514d

      I go on and off worrying about that… I’m a teacher and I flare BAD at the beginning of every school year, and I wonder if and when I will start needing mobility aids, or become clinically disabled. But the flare passes, and I am currently trying not to plan out the future too intensely.

      • Myshadowle

        514d

        @TrebleNurturer Fall is the absolute worse flare for me. Despite being mostly in remission, this time of year I've learned to preemptively ask for Prednisone to start ahead of it and that helps.

        • Lots_of_ish

          496d

          @Myshadowle this is good to know. I struggle with pain from fibromyalgia and early RA. My struggle is when do I take prednisone? How bad should the pain be to take steroids? I feel great on steroids! But I feel steroids are just a temporary bandaid.

    • Brooklynn92

      520d

      RA treatments have come a long way in even just the last 10 years. I've had RA for 13 years. 50 years ago I would have been unable to work and sometimes bedridden. As it stands I am able to live a normal life 85% of the time and can still manage through most flares. If we have come that far in such a short amount of time, think where we will be in the next ten years!

      • Brooklynn92

        520d

        @Brooklynn92 And RA works in cycles. You are going through a rough patch, but it won't always be this bad.

    • peachfuzz

      535d

      i struggle with this too. we’re doing all we can do to avoid that fate!!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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