Struggling with POTS Diagnosis and Cardiologist's Response

Hey everyone. I had a tilt table test and although my heart rate went over 180 from sitting up. My resting rate was 92. I didn’t pass out but I did feel nauseous and shaking and sweating. My cardiologist said that because I didn’t pass out that I don’t have pots. I’ve passed out before from this condition I have but he didn’t care. Symptoms are all the same as pots, blood pooling, shaking, very high heart rate, BP drops, and I do pass out about 2 times a week. Upon standing up I get blacked out vision about 1 minute after standing and I’m so tired of living like this.

Your answer

Livs26

2y ago

The diagnosis of pots does not require you to pass out with the ttt. Anyone with heartrate above 120 in the first 5 min is positive.

Maginater

2y ago

That's insane. Get a second opinion. I've never passed out due to my pots (though I've gotten close) and I was officially diagnosed last week. Though I also had to get a second opinion because my first cardiologist was a tool and told me that I was just fat. My second cardiologist said that I OBVIOUSLY have POTS and that the other guy didn't have a clue what he was talking about. Hang in there!

Zoey_Val

2y ago

I did not pass out during my test either but my doctor still thinks I have POTS, I definitely have Long Covid which is just another form of dysautonomia. I have fainted many times in the past few years just not during the test. Unfortunately with POTS there are not many treatments and honestly you could try some of the POTS recommendations such as increasing fluids and salt intake and wearing compression socks. Won’t do any harm and if it helps that’s a good start. I also try to walk daily and am on an anti inflammatory diet. Ice packs have helped me the most tbh!

DieselWeasel

2y ago

Do it again. With another hospital if you have to. Did they give you a vasodilator? They usually do the test without and then with medication. If not they did it wrong. Just incase I would also explore other electrophysiological explanations.

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