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Struggling with POTS and lack of understanding

JaxsonEvan

486d

I'm really tired of my conditions not being taken seriously. I was recently diagnosed with POTS and have been struggling with the symptoms since I was 7. My father still refuses to take it as it is and suggests that I am lazy and do not need accommodations. If I didn't need accommodations, I wouldn't have laid in the middle of the ground at 6 Flags for 2 hours in and out of consciousness while crying because I was ruining the whole day. How am I supposed to be taken seriously? Is hospitalization all that speaks words?

4

8

8

Postural Orthostatic Tachycardia Syndrome (POTS)

acute lethargy

Depression

Autism Spectrum Disorder (ASD)

Anxiety (Including GAD)

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Top reply
    • GenderlessGoose

      482d

      @gurspaceport this is one of the things I hate most. when you get a diagnosis and someone says "oh it's just xyz" as if the condition doesn't impact you. I typically equate it to when someone gets diagnosed with a certain type of cancer and they get told "at least it's the good cancer" because it has a lower death rate than others.

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    • lillia

      484d

      I feel you I've been having symptoms since I was 8, still don't have an official diagnosis.

      1

      Reply
    • gurspaceport

      484d

      The people who diagnosed me (who were male) said, "It's okay. It's just POTS."

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      Reply
      • GenderlessGoose

        482d

        @gurspaceport this is one of the things I hate most. when you get a diagnosis and someone says "oh it's just xyz" as if the condition doesn't impact you. I typically equate it to when someone gets diagnosed with a certain type of cancer and they get told "at least it's the good cancer" because it has a lower death rate than others.

        2

        Reply
    • Sweetpea22

      485d

      I feel this way also. I'm sorry

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      Reply
    • JaxsonEvan

      486d

      same with me. Hence the reach out to the internet. Having people that relate definitely helps

      1

      Reply
      • GenderlessGoose

        486d

        @JaxsonEvan that's why I joined this. it's been hard lately because I don't know a ton of people with similar experiences

        1

        Reply
    • GenderlessGoose

      486d

      as much as it sucks, some people refuse to acknowledge the reality of certain illnesses, especially ones that are seen as "invisible" even though anyone living with them sees their effects constantly. my father has always tried to pretend like I am at fault for my conditions, and it can be really hard. the fatigue that I experience is almosy always portrayed as laziness, but finding people who experience similar things has helped because it's reassuring

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      Reply
    • SavannahKayelynn

      486d

      I’m so sorry. I feel this. I have ulcerative colitis and it’s terrible. People just assume that my fatigue is Lazieness. Honestly I stopped trying to prove and have people taking me seriously. Family included. I found outside support in friends and it’s made a world of difference. You have someone that takes you seriously friend!

      1

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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