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Crowsasgods

530d

Has anyone else found that being young and severely disabled makes not being neglected especially difficult? I have found myself unable to meet many basic functions alone. doing it myself has lead to worsening at a fast rate. I can no longer even meet many basic needs to survive on my own. I am scared that I will be trapped in neglect from birth until death.

Top reply
    • Chesbro99

      530d

      Finding someone who will help is so huge. I hope you can find someone

    • Miyuki

      529d

      I feel that. I wouldn’t say I’m severely disabled but I have a really hard time taking care of myself. Like I have limited options to get things done. If I brushed my teeth I don’t have the energy to make my bed up. If I make a small meal I don’t have to energy to clean up my mess. I am constantly fatigued and don’t have energy for most things and almost falling asleep at any time and not to mention the body pain and aches and weakness. I feels hard and especially being young you keep comparing yourself to others even though most young adults aren’t disabled. It’s hard to realize that you’re actually disabled and can’t do much let alone other people around you not understanding that. I appreciate my mom she does a lot for me but at the same time she has these expectations of me like I’m functioning normally. “I’ve been asking you the past week to do simple tasks” even though… they’re not simple for me obviously if it was simple I could do it no problem. It’s like she forgets I have memory issues and weakness in different areas of my body so one day I can use my hands well the next I can’t. It’s hard since I feel like I also can’t burden anyone else like my mom constantly because she has other things to take care of and my other disabled sister

    • JosephOpalLover

      529d

      I feel you am partially paralyzed and my family treats me like trash. It's is sickening and heartbreaking to even hear that others have the similar issues 💔 I also suffer from DDD in 5 of my discs upper and lower and am still forced to find ways to pay for my basic needs I stay with my mom and she is the queen of neglect. I can go on all day how horrible of a human being she is but just know your not alone and stay strong 💪 need to talk message me

    • Belugabear

      529d

      I am not neglected but I totally get the difficulties of being alone, because of my illnesses I haven’t been able to make many friends at school so when I’m there it’s so lonely. I’ve found support groups help a lot, my university actually has a club for people with disabilities and chronic illnesses that has been a godsend. I’ve learned to stop trying to explain my situation to people who aren’t in it and instead put more effort toward finding people in a similar place as I am. I hope that helps somewhat! If you ever need to talk please feel free to message me!!!

    • Chesbro99

      530d

      Finding someone who will help is so huge. I hope you can find someone

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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